International Journal of Healthcare Information Systems and Informatics, 8(1), 1-16, January-March 2013 1
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Keywords: Health Informatics, Health Internet-Register, Long-Term and Chronic Condition, Multiple
Sclerosis (MS), Qualitative Content Analysis
Identifying and Addressing
the Barriers to the Use
of an Internet-Register
for Multiple Sclerosis
Lisa A. Osborne, College of Medicine, Swansea University, Swansea, UK
Hazel M. Lockhart-Jones, College of Medicine, Swansea University, Swansea, UK
Rodden M. Middleton, College of Medicine, Swansea University, Swansea, UK
Simon Thompson, College of Medicine, Swansea University, Swansea, UK
Inocencio D. C. Maramba, College of Medicine, Swansea University, Swansea, UK
Kerina H. Jones, College of Medicine, Swansea University, Swansea, UK
David V. Ford, College of Medicine, Swansea University, Swansea, UK
J. Gareth Noble, College of Medicine, Swansea University, Swansea, UK
ABSTRACT
Given the potential of health internet-registers, this study examined how such registers can be made more
effective and effcient. This involved investigating the actual barriers to usage experienced by those for
whom such registers are established to help. To elicit responses regarding the opinions, views, and experi-
ences of participants, concerning their various reasons for non-progression or non-completion of the pilot
UK MS Register, a list of ten potential key areas of diffculty, in the form of short statements, was e-mailed
to participants. A content analysis revealed that there were four main areas of concern that could represent
potential barriers for health internet-registers, in general, and that need to be considered when establishing,
designing, and developing such registers: technical aspects of using the internet; computer literacy and abil-
ity, encompassing website design, clarity, and user-friendliness; symptom mismatches with register content;
and condition-specifc effects and impacts as barriers to internet-register use.
DOI: 10.4018/jhisi.2013010101