Open Access Maced J Med Sci. 2020 Sep 03; 8(F):241-245. 241
Scientifc Foundation SPIROSKI, Skopje, Republic of Macedonia
Open Access Macedonian Journal of Medical Sciences. 2020 Sep 03; 8(F):241-245.
https://doi.org/10.3889/oamjms.2020.5024
eISSN: 1857-9655
Category: F - Review Articles
Section: Narrative Review Article
Cryopyrin-Associated Periodic Syndromes and Treatment Options
Lidija Kareva*, Katarina Stavrik, Kristina Mironska
Department of Immunology, University Pediatric Clinic, University “Ss. Cyril and Methodius”, Skopje, Republic of Macedonia
Abstract
Cryopyrin-associated periodic syndromes (CAPSs) are a growing family of autoinfammatory diseases, also known
as periodic fever syndromes. There are three forms of CAPS: (1) Familial Cold autoinfammatory syndrome or familial
cold urticaria, (2) Muckle-wells syndrome, and (3) neonatal-onset multisystem infammatory disease or chronic
infantile neurological cutaneous articular syndrome. Genetic mutations in the NLRP3 gene were found to be present
in most patients. The foremost common fndings between all the CAPS disorders are rash, fever which is sometimes
present at birth or in early childhood, joint problems, and conjunctivitis. More extreme forms of CAPS include more
persistent infammation that can cause hearing loss and meningitis and can lead to mental and developmental
delays. Drugs for CAPS target the source of infammation – which is the over-production of interleukin 1ß by modifed
cryopyrin infammasomes. Three drugs are used to treat CAPS: Rilonacept, canakinumab, and anakirna. With these
drugs, the prognosis is greatly improved, with most patients having less frequent episodes, decreased buildup of
amyloid in the body, and extended life of severe cases up to adulthood.
Edited by: Slavica Hristomanova-Mitkovska
Citation: Kareva L, Stavrik K, Mironska K. Cryopyrin-
Associated Periodic Syndromes and Treatment Options.
Open Access Maced J Med Sci. 2020 Sep 03; 8(F):241-245.
https://doi.org/10.3889/oamjms.2020.5024
Keywords: Cryopyrin-associated periodic syndrome;
Familial cold autoinfammatory syndrome; Muckle-Wells
syndrome; Neonatal-onset multisystem infammatory
disease; Anakinra; Rilonacept; Canakinumab
*Correspondence: Lidija Kareva, Department of
Immunology, University Pediatric Clinic, “Ss. Cyril and
Methodius University,” Vodnjanska 17, 1000 Skopje,
Republic of Macedonia. Phone: +389075215613.
E-mail: kvlidija@yahoo.com
Received: 30-May-2020
Revised: 25-Jul-2020
Accepted: 29-Jul-2020
Copyright: © 2020 Lidija Kareva, Katarina Stavrik,
Kristina Mironska
Funding: This research did not receive any fnancial
support
Competing Interest: The authors have declared that no
competing interest exists
Open Access: This is an open-access article distributed
under the terms of the Creative Commons Attribution-
NonCommercial 4.0 International License (CC BY-NC 4.0)
Introduction
Cryopyrin-associated periodic syndromes
(CAPSs) are a growing family of autoinfammatory
diseases, also known as periodic fever syndromes.
Autoinfammatory diseases are a group of disorders
characterized by repetitive episodes of systemic and
organ-specifc infammation. Unlike autoimmune
diseases which are caused by activation of the
specifc immune system, people with autoinfammatory
diseases do not produce autoantibodies or antigen-
specifc lymphocytes, instead, these diseases are
caused by genetic mutations in molecules that regulate
the innate immune response [1], [2]. There are three
forms of CAPS: (1) Familial cold autoinfammatory
syndrome (FCAS) or familial cold urticaria, (2) Muckle-
Wells Syndrome (MWS), and (3) Neonatal-onset
multisystem infammatory disease (NOMID) or chronic
infantile neurological cutaneous articular syndrome
(CINCA). Genetic mutations in the NLRP3 gene were
found to be present in most patients [3], [4], [5], [6].
These three syndromes represent varying degrees
of infammation caused by the same condition with
diferent levels of severity. The NLRP3 gene gives
instructions for making a protein called cryopyrin which
is one of the regulators of the process of infammation.
Cryopyrin is included within the get together of a
molecular complex called an infammasome that
mediates activation of caspase-1. Caspase-1 regulates
the production of interleukin-1 (IL-1) beta. NLRP3
mutations result in an abnormal cryopyrin structure,
leading to abnormally high infammasome activity
response, resulting to overproduction of proinfamatory
cytokine IL-1ß [3], [4], [5], [6], [7], [8], [9]. These results
are connected with the episodes of fever and damage
to the body’s cells and tissues. The foremost common
fndings between all the CAPS disorders are rash, fever
which is sometimes present at birth or in early childhood,
joint problems, and conjunctivitis. More extreme forms
of CAPS include more persistent infammation that
can cause hearing loss and meningitis and can lead to
mental and development delays.
Epidemiology
CAPS is very rare diseases. The incidence in
Germany is 0.34 per 10
6
persons-years [10]. Based on
that, research in Republic of Macedonia should be 1–2
new patients every 2 years.