From Single Site to Societal Belief:
The Impact of Pediatric Oncology
Nursing Research
Susan M. Schneider, PhD, RN, CS, AOCN,
Pamela S. Hinds, PhD, RN, CS,
and Michele Pritchard, MSN, RN, CPNP
This review describes the evolution of pediatric oncology nursing research over
the past 25 years. It highlights practice-changing contributions from single-site
studies and from multisite trials and discusses strategies for interdisciplinary
collaboration. Technological advances that will alter the way in which studies are
conducted and findings are disseminated will influence the future of nursing
research. Studies implemented by pediatric nurse researchers will continue to
influence practice and change how we, and others, view the experience of
childhood cancer.
2001 by Association of Pediatric Oncology Nurses
D
URING THE PAST 25 YEARS, nursing
research has had a positive impact on the
specialty of pediatric oncology nursing in vari-
ous ways and through diverse methods. The
diversity has included single-site and multisite
studies—a lone researcher doing work at a single
institution and multidisciplinary research teams
who represent more than one institution collab-
orating on the same study. Individually and
collectively the research implemented by pedi-
atric oncology nurse researchers has helped to
change the way we practice and even the way
that we and others outside of the specialty think
about childhood cancer. Examples of the im-
pact already made through nursing research and
those likely to have impact in the future will be
discussed in this article. The examples include a
reflection on the early and continuing work by
Dr. Ida Martinson in the care of the child dying
from cancer, a description of the practice-chang-
ing contributions from single-site studies and
from multisite trials, and the likely future effect
of technology on the conduct and distribution of
research findings.
The Impact of Pediatric Oncology Nursing
Research on Societal Beliefs About
Dying Children
An example of a nursing research program
that was created in response to an immediate
clinical care crisis but that also helped to change
societal views about how and where a child may
die is seen in the work of Ida Martinson, PhD,
RN. As a new researcher looking to identify an
area of study to pursue, Dr. Martinson was
impressed by a physician colleague’s dilemma
of having to admit a young boy with terminal
cancer to the hospital to die (I.M. Martinson,
personal communication, December 1, 2000).
As Martinson recalls, “immediately it struck me,
because I had just a year earlier cared for my
father-in-law at home: why admit a child to the
hospital if he was going to die?” Out of a prac-
tical issue of improving the potential care for the
child and his family, Dr. Martinson developed a
From the Graduate Oncology Nursing Program, Duke University
School of Nursing, Durham, NC, and St. Jude Children’s Research
Hospital, Memphis, TN.
Address reprint requests to Susan M. Schneider, PhD, RN, CS,
AOCN, Director, Graduate Oncology Nursing Program, Duke
University School of Nursing, Box 3322 DUMC, Durham, NC
27710.
© 2001 by Association of Pediatric Oncology Nurses
1043-4542/01/1804-0004$35.00/0
doi:10.1053/jpon.2001.24797
164 Journal of Pediatric Oncology Nursing, Vol 18, No 4 (July-August), 2001: pp 164-170