Cancer and Oncology Research 1(2): 55-64, 2013 http://www.hrpub.org
DOI: 10.13189/cor.2013.010206
Evaluation of Community-Based Projects to Reduce
Cancer Disparities among Underrepresented Groups and
Participants Satisfaction in Health Disparities Projects
Saleh M.M. Rahman
1,*
, Jay Brown
2
, Selina Rahman
3
, Helene Vilme
4
, Monica Hayes
5
1
Institute of Public Health, Florida A&M University, and, College of Medicine, Florida State University, 209-A FSH Science & Research
Center, Tallahassee, FL 32307, United States
2
Institute of Public Health, Florida A&M University, Tallahassee, FL 32307, United States
3
TMH and FSU College of Medicine Internal Medicine Residency Program, Tallahassee, FL 32308, United States
4
Institute of Public Health, Florida A&M University, Tallahassee, FL 32307, United States
5
Office of Minority Health, Florida Department of Health, Tallahassee, FL 3230, United States
*Corresponding Author: saleh.rahman@famu.edu
Copyright © 2013 Horizon Research Publishing All rights reserved.
Abstract Cancer is the second leading cause of death in
the United States. The objectives of this study were to
evaluate cancer prevention programs and participants
satisfaction in 51 disparities projects in Florida. This
three-phase evaluation included evaluability assessment,
process, immediate outcome and impact evaluation using
qualitative assessment, case study, document analysis,
face-to-face interviews, and survey. In 2006-2007, a total of
3,165, and in 2008-2009, a total of 1,632 individuals
participated in the programs respectively. In breast and
cervical cancer prevention programs, change of proportion
of African-American and Haitian recruitment significantly
increased from 2006-2008 to 2007-2009 (-11.3 to 3.4).
Among other services, all means of outreach such as mobile
vans, faith-based activities, health fairs, and small-group
education sessions also increased by 5.3%, 7.9%, 5.5%, and
9.4% respectively. In participants' satisfaction the majority
of respondents (N=231) were 35-54 years old (46.7%),
non-Hispanic Black (81.7%), female (70.3%), high school
and some college educated (58.8%), and with income less
than $25,000 (65.5%). The majority of the participants were
very satisfied with the program staff’s training, cultural
sensitivity, language skills, resources, education materials,
referral system, and changing behavior (mean score: 4.5-4.7)
and with the overall project and the project’s role in
improving their quality of life.
Keywords Cancer Disparities, Program Evaluation,
Community-Based Programs, Closing The Gap,
Underserved Population
1. Introduction
Cancer is the second leading cause of death in the United
States, surpassed only by cardiovascular diseases, being
responsible for one in every four deaths. The Centers for
Disease Control and Prevention (CDC) reported that 567,614
people had died from cancer, and more than 1.48 million
people were diagnosed with cancer in 2009 alone
1
. Smith
estimated that the total projected cancer incidence will
increase by approximately 45%, affecting 2.3 million people
in the US by the year 2030
2
. The physical, emotional, mental,
and spiritual tolls of cancer diagnoses on the survivor, their
friends and family are incalculable but financial costs of
cancer is overwhelming. The National Institutes of Health
(NIH) estimated that cancer has cost the United States
approximately $263.8 billion in medical costs and lost
productivity in 2010
3
.
The National Cancer Institute
3
(NCI) estimated that
1,660,290 people in the United States will be diagnosed with
and 580,350 will die from cancer of all sites in 2013,
narrowing the gap with the first place killer of cardiovascular
disease. The Surveillance, Epidemiology and End Results
(SEER) Cancer Statistics Review inform us that the national
median age at diagnosis for cancer of all sites was 66 years of
age from 2006-2010
4
. The age-adjusted incidence rate was
463.0 per 100,000 people per year. The median age at death
for cancer of all sites was 72 years of age for the same time
period. The age-adjusted death rate was 176.4 per 100,000
people per year.
The prevalence of cancer nationwide is also astonishing
with approximately 13,027,914 people affected in 2010.
That’s over 4.2% of the entire US population diagnosed with
cancer. The SEER Program also calculated the lifetime risk
of having cancer to be 41.24% based on rates from
2007-2009
4
. This means that 1 in 2 men and women will be
diagnosed with some form of cancer at some point during
their lifetime. These national trends are also reflected in the