Clinical Nutrition (1995) 14 (Suppl. 1): 28-32
© Pearson Professional Ltd 1995
Long-term home parenteral nutrition in children
M. CANDUSSO, L. GIGLIO and D. FARAGUNA
Department of Paediatrics, Child Health Institute "Burlo Garofolo" Trieste, Italy (Reprint requests and
correspondence to: D. F., Department of Pediatrics, Instituto per I'lnfanzia "Burlo Garofolo" Via dell'lstria
65/1, 34100 Trieste, Italy)
Introduction
The prognosis of children suffering from chronic
intestinal failure has been dramatically improved
by parenteral nutrition (PN) which allows normal
growth and development in the absence of a sufficient
enteral supply of nutrients. A small percentage of
patients may become permanently dependent on PN
and in these cases, home parenteral nutrition (HPN) is
crucial for allowing growth within a normal family
environment. 14 However, new problems (such as
venous access availability, metabolic complications,
and psychological adaptation), are emerging in the
management of life-long PN dependent patients
which also pose possible difficulties for HPN. In this
paper, we report our experience with HPN paediatric
patients and have focused on long-term patients.
Patients and methods
Since 1982, 19 children (6 females and 13 males)
have undergone HPN. The most frequently diagnosed
conditions were short bowel syndrome (n -- 6) and
intractable diarrhoea (n = 6); other diagnoses were
chronic intestinal pseudo-obstruction syndrome (n =
2), lymphangiectasia (n = 2), inflammatory bowel dis-
ease (n = 1) and cystic fibrosis (n = 1). One patient,
had biliary cirrhosis whilst undergoing liver trans-
plantation. HPN was started in 13 patients during their
first year of life, in three during childhood (4-10
years) and in three patients before puberty.
Cuffed tunnelled silastic catheters (Broviac) were
surgically inserted up to the vena cava through the
jugular (external as choice) or safena veins (only if
superior access was not available). The emergency
site was always positioned in the thorax. Cyclic PN
(12-16-hour nightly infusion) was commenced as
soon as possible in stable metabolic conditions. Infu-
sions were started and stopped gradually in order to
reduce the risk of hyper- and hypoglycaemia, espe-
cially in infants.
The parenteral mixtures were prepared in our
hospital pharmacy and contained glucose, amino-
acids, minerals and lipids which accounted for 30-
40% of non-protein energy. Vitamins were added at
home before infusion, (delivered since 1985 by an
all-in-one system) and a monthly supplement of folic
acid, vitamins K, A and B12 was provided. Nutrient
intakes were defined according to standard daily
requirements (LARN) but individually tailored to
clinical status, metabolic tolerance, enteral intakes
and age. After a training period in hospital, patients
were discharged and continued their therapy at home.
Parents took care of the infusion line. The solutions
were prepared and sent to patients' homes once a
week by our pharmacy service.
All patients received minimum enteral feeding as
soon as tolerable. When indicated, a pre-digested
formula was chosen to reduce antigenic stimulation
to damaged intestine. In stable conditions ad libitum
oral intakes, avoiding strong antigens such as eggs,
gluten and cows' milk, were allowed, depending on
intestinal tolerance.
Patients were visited periodically to assess nutri-
tional status and to monitor technical or metabolic
complications of PN and any underlying disease.
Results
Outcome
The duration of HPN averaged 1326 days (range 92-
4785), giving us experience equivalent to 69 patient
years (Table 1). None of the patients died of PN-
related complications, but 3 patients died of their
primary illness after an average of 346 days of PN
(range 92-844). In 3 cases, PN was stopped and en-
teral nutrition became possible after an average of 395
days (range 186-706). Seven patients made a com-
plete recovery and reached intestinal autonomy after
an average of 579 days (range 173-1592).
HPN is still ongoing in 6 patients, 5 of whom will
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