Original Article
© 2006 Blackwell Publishing Ltd 371
Blackwell Science, LtdOxford, UKCCHDChild: Care, Health and Development0305-1862Blackwell Publishing Ltd, 2005 ? 2005323371385Original Article
Parental satisfaction with support and educationJ. Renty and H. Roeyers
Correspondence:
Jo Renty, Research Group
Developmental Disorders,
Department of Experimental
Clinical and Health
Psychology, Ghent
University, Henri Dunantlaan
2, B-9000 Ghent, Belgium
E-mail: Jo.Renty@UGent.be
Original Article
Satisfaction with formal support and
education for children with autism
spectrum disorder: the voices of
the parents
J. Renty and H. Roeyers
Research Group Developmental Disorders, Department of Experimental Clinical and Health Psychology, Ghent
University, Henri Dunantlaan, Ghent, Belgium
Accepted for publication 24 August 2005
Abstract
Introduction The aim of the present study was to identify and describe factors associated with
variations in the level of parental satisfaction with formal support and education for children with
autism spectrum disorder (ASD) in Flanders.
Methods Participants were recruited by a mailing from a diagnostic centre for pre-schoolers and by
advertisements dispersed in the Flemish parent organization for ASD and in services and special
schools. The sample consisted of 244 parents of children with ASD (age range: 2.69–17.81 years, male/
female sex ratio 4 : 1). The data were collected using a questionnaire on experiences with education
and support, which was compiled for the purpose of this study. The data resulting from the
questionnaire were supplemented with information obtained from semi-structured in-depth
interviews with a stratified sample of 15 parents.
Results and conclusions The study revealed that parents experienced difficulties with the diagnostic
process, with support and education provided by mainstream settings and with the accessibility of
autism-specific service provisions. Conversely, parents reported to be satisfied with the quality of
autism-specific support and education. Predictors of overall satisfaction were parental involvement
in formal support, knowledge of available service provisions and time between first consultation and
final diagnosis. Practical implications of the results are discussed.
Keywords
autism spectrum disorders,
diagnosis, education,
parental satisfaction
Introduction
There have been a lot of reports in the literature
about the importance of social support in individ-
ual, interpersonal and family functioning in fami-
lies of children with a disability (e.g. Dunst et al.
1990; Kwai-sang Yau & Li-Tsang 1999; White &
Hastings 2004). Corresponding to the double
ABCX model (McCubbin & Patterson 1983),
available support may act as a buffer against the
demands of caring for a child with a disability,
resulting in better family adaptation. Particularly,
the role of informal social support has been estab-
lished (White & Hastings 2004). Different sources
of informal social support in families of children
with a disability are expected to influence personal,
family and child functioning. First, several studies
have demonstrated that support within the nuclear
family correlates with lower stress levels in parents
of children with a disability (Johnston et al. 2003).