Commentary
Barriers to Fertility Preservation
in Male Adolescents With Cancer:
It’s Time for a Multidisciplinary
Approach that Includes Urologists
Leena Nahata, Laurie E. Cohen, and Richard N. Yu
A
cancer diagnosis can be devastating news for a
child and his or her family. Fortunately, ad-
vances in the treatment of childhood cancers
have resulted in 5-year survival rates close to 80%.
1
Late
effects of cancer treatment, such as infertility, have thus
become an active area of research; a recent study found
that male cancer survivors were only half as likely to sire
a pregnancy as healthy males.
2
Surgery, chemotherapy,
and radiation exposure can all result in temporary or
permanent damage to sperm production, and fertility may
be compromised soon after treatment has begun.
3,4
In
addition to preserving reproductive capacity, sperm cryo-
preservation in young adults appears to have other ben-
efits; for example, sperm banking has been reported to
help young men endure the emotional battle against
cancer.
5
For all of these reasons, boys who are able to
produce a semen sample are encouraged to bank sperm
before starting oncological treatment.
Fertility preservation has been identified as a priority
for practitioners, patients, and parents. However, a mi-
nority of patients actually pursue sperm banking,
6,7
and
many barriers appear to exist. One study showed that
although 51% of male cancer patients showed interest in
having children in the future and were given a choice to
bank, only 24% of them actually banked sperm.
7
Factors
such as socioeconomic status
8,9
and religious concerns
8
have been reported as barriers, but the data are inconsis-
tent and these variables are difficult to change. In com-
parison, the role of the practitioner and the quality of
counseling provided have repeatedly been reported as the
most significant factors in the decision to bank
sperm,
7,10-12
particularly in adolescents who may have
difficulty making decisions about their future and father-
hood.
13
Unfortunately, there is no universal approach regard-
ing fertility preservation counseling for adolescents with
cancer, resulting in many inconsistencies between health
care centers and practitioners. A 2002 study showed that
even though 91% of health professionals acknowledged
that sperm banking should be offered to all patients at
risk, 48% of them stated that they never or rarely initiate
the discussion.
7
To address these discrepancies, recom-
mendations were made by the American Society of Clin-
ical Oncology (ASCO) in 2006
14
and the American
Academy of Pediatrics (AAP) in 2008
15
to offer cryo-
preservation of sperm to male patients of reproductive
age. However, the current sperm banking rates remain at
or under 25%, suggesting that there is a disconnect
between these guidelines and the actual frequency with
which sperm banking is being offered and pursued.
8
This
commentary highlights the major barriers to fertility pres-
ervation in this unique population of patients. Awareness
of these issues and development of a multidisciplinary
approach, with the inclusion of urologists, may ultimately
increase the number of adolescents who choose to pre-
serve fertility.
PRACTITIONERS HAVE
LITTLE TIME AND INADEQUATE
KNOWLEDGE ABOUT THIS TOPIC
Semen cryopreservation was first established as a safe and
effective method of fertility preservation in adults. Dur-
ing interviews with adult male cancer survivors, the
amount of guidance that had been given by their health
care providers was identified as the most important factor
in the decision to bank sperm. The cancer survivors felt
that practitioners should be clear and direct when dis-
cussing the risk for infertility, and should emphasize the
importance of sperm banking. Patients who had not
received this guidance often did not bank sperm and later
expressed regret.
10
Schover et al found that men who had
no memory of being told about sperm banking were
Financial Disclosure: The authors declare that they have no relevant financial
interests.
From the Division of Endocrinology, Department of Medicine, Children’s Hospital
Boston, Boston, MA; and the Department of Urology, Children’s Hospital Boston,
Boston, MA
Reprint requests: Leena Nahata, M.D., Division of Endocrinology, Children’s
Hospital Boston, 300 Longwood Avenue, Boston, MA 02115. E-mail: leena.nahata@
childrens.harvard.edu
Submitted: December 29, 2011, accepted (with revisions): February 20, 2012
1206 © 2012 Elsevier Inc. 0090-4295/12/$36.00
All Rights Reserved doi:10.1016/j.urology.2012.02.035