Moral Distress among Disaster Responders:
What is it?
Martina E. Gustavsson, RN, MSc;
1
Filip K. Arnberg, Assoc Prof, PhD;
2
Niklas Juth, Assoc Prof, PhD;
3
Johan von Schreeb, Prof, MD, PhD
1
Abstract
Introduction: Current research of moral distress is mainly derived from challenges within
high-resource health care settings, and there is lack of clarity among the different definitions.
Disaster responders are prone to a range of moral challenges during the work, which may
give rise to moral distress. Further, organizations have considered increased drop-out rates
and sick leaves among disaster responders as consequences of moral distress. Therefore, ini-
tiatives have been taken to address and understand the impacts of moral distress and its con-
sequences for responders. Since there is unclarity among the different definitions, a first step
is to understand the concept of moral distress and its interlinkages within the literature
related to disaster responders.
Hypothesis/Problem: To examine how disaster responders are affected by moral chal-
lenges, systematic knowledge is needed about the concepts related to moral distress.
This paper aims to elucidate how the concept of moral distress in disaster response is defined
and explained in the literature.
Methods: The paper opted to systematically map the existing literature through the meth-
ods of a scoping review. The searches derived documents which were screened regarding
specific inclusion criteria. The included 16 documents were analyzed and collated according
to their definitions of moral distress or according to their descriptions of moral distress.
Results: The paper provides clarity among the different concepts and definitions of moral
distress within disaster response. Several concepts exist that describe the outcomes of
morally challenging situations, centering on situations when individuals are prevented from
acting in accordance with their moral values. Their specific differences suggest that to
achieve greater clarity in future work, moral stress and moral distress should be
distinguished.
Conclusion: Based on the findings, a conceptual model of the development of moral dis-
tress was developed, which displays a manifestation of moral distress with the interplay
between the responder and the context. The overview of the different concepts in this model
can facilitate future research and be used to illuminate how the concepts are interrelated.
Gustavsson ME, Arnberg FK, Juth N, von Schreeb J. Moral distress among disaster
responders: what is it?. Prehosp Disaster Med. 2020;35(2):212–219.
Introduction
Background
Disasters are chaotic events characterized by health needs that exceed existing capacities,
requiring outside health care assistance. This assistance can be provided by national and
international disaster health care responders. International disaster responders can be
deployed by governmental agencies and non-governmental organizations. Their work is
characterized by a lack of resources (eg, time, materials, or capacity). Difficult decisions must
be made in often dangerous and challenging contexts. Choices must rapidly be made
regarding whom to treat first, who must wait, and how to make optimal use of the limited
resources available. The morally challenging choices add an additional burden to the work in
an already stressful environment filled with risk factors for traumatic stress and burnout.
1
To support responders, there are a range of policies and legislations to guide their work,
2–4
as well as ethical principles and documents on medical ethics in disasters.
5
These documents,
however, outline general policies that are difficult to apply in practice. They provide limited
guidance for specific situations in choosing the “best solution” for whom to treat and whom
to leave. In reality, there are few, if any, specific training programs to support ethically
informed decision making in disaster settings. Algorithms for triage within mass-casualty
1. Centre for Research on Healthcare in
Disasters, Department of Global Public
Health, Karolinska Institutet, Stockholm,
Sweden
2. National Centre for Disaster Psychiatry,
Department of Neuroscience, Uppsala
University, Uppsala, Sweden
3. Stockholm Centre for Healthcare Ethics
(CHE), Department of Learning,
Informatics, Management and Ethics
(LIME), Karolinska Institutet, Stockholm,
Sweden
Correspondence:
Martina Gustavsson, RN, MSc
The Centre for Research on
Healthcare in Disasters
Health Systems and Policy (HSP)
Department of Global Public Health
Karolinska Institutet
Tomtebodavägen 18, 171 77
Stockholm, Sweden
E-mail: martina.gustavsson@ki.se
Conflicts of interest: none
Keywords: disaster ethics; disaster responders;
disaster response; moral distress; moral stress
Abbreviations:
ICRC: International Committee of the Red Cross
MSF: Médecins Sans Frontières
UREPH: Research Unit on Humanitarian
Principles and Practices of MSF Switzerland
Received: June 28, 2019
Revised: August 20, 2019
Accepted: September 7, 2019
doi:10.1017/S1049023X20000096
© World Association for Disaster and
Emergency Medicine 2020. This is an Open
Access article, distributed under the terms of
the Creative Commons Attribution licence
(http://creativecommons.org/licenses/by/4.0/),
which permits unrestricted re-use, distribution,
and reproduction in any medium, provided the
original work is properly cited.
SPECIAL REPORT
Prehospital and Disaster Medicine Vol. 35, No. 2
https://doi.org/10.1017/S1049023X20000096
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