© 2016 S. Karger AG, Basel
Review Article
Dement Geriatr Cogn Disord 2016;42:342–368
The Experience of Relations in Persons with
Dementia: A Systematic Meta-Synthesis
Siren Eriksen
a
Anne-Sofie Helvik
a, c
Lene Kristin Juvet
b, d
Kirsti Skovdahl
b
Linn Hege Førsund
b
Ellen Karine Grov
e
a
Norwegian National Advisory Unit on Ageing and Health, Tønsberg,
b
Institute of Nursing
Science, Faculty of Health and Social Work, University College of Southeast Norway,
Drammen,
c
Department of Public Health and General Practice, Norwegian University of
Science and Technology, Trondheim,
d
The Norwegian Knowledge Centre for the Health
Services, and
e
Department of Nursing and Health Promotion, Faculty of Health Sciences,
Oslo and Akershus University College of Applied Sciences, Oslo, Norway
Keywords
Dementia · Meta-synthesis · Interviews · Lived relations · Life-world perspective · Person’s
experiences
Abstract
Background: Dementia influences a person’s experience of social relationships, as described
in several studies. In this systematic meta-synthesis of qualitative studies, we aim to interpret
and synthesize the experiences of persons with dementias and their relations with others. Sum-
mary: Living with dementia changes life, leading to new social roles and different social sta-
tuses. Persons with dementia experience being disconnected and dependent on others, feeling
like being a burden, and being a person who is treated in paternalistic ways. Family, friends and
others with dementia might play significant roles in their ability to maintain a meaningful life.
Key Messages: Three categories emerged from the data, change in life, change in relations, and
maintenance of meaningful aspects in life; these categories are intertwined and essential in
sustaining a lifeline for persons with dementia. The comprehensive meaning of the material is
understood as the expression: Living a meaningful life in relational changes.
© 2016 S. Karger AG, Basel
Introduction
Strauss [1] has stated that to each and every single person there is nothing general about
life – life is in the details. From this perspective, lived experience and lived understanding of
illness and context are important aspects of healthcare.
The psychosocial dimension often influences a person’s health from an overall perspective.
House et al. [2] showed that good, robust social relationships have as much of an impact on
Accepted: October 10, 2016
Published online: November 19, 2016
Siren Eriksen
Norwegian National Advisory Unit on Ageing and Health (Ageing and Health)
Postbox 2136
NO–3103 Tønsberg (Norway)
E-Mail siren.eriksen @ aldringoghelse.no
www.karger.com/dem
DOI: 10.1159/000452404