1 Kenney M, Mamo L. Med Humanit 2019;0:1–12. doi:10.1136/medhum-2018-011597
The imaginary of precision public health
Martha Kenney,
1
Laura Mamo
2
Original research
To cite: Kenney M, Mamo L.
Med Humanit Epub ahead
of print: [please include Day
Month Year]. doi:10.1136/
medhum-2018-011597
1
Women and Gender Studies,
San Francisco State University,
San Francisco, California, USA
2
Health Equity Institute, San
Francisco State University, San
Francisco, California, USA
Correspondence to
Dr Martha Kenney, Women and
Gender Studies, San Francisco
State University, San Francisco,
CA 94132, USA;
mkenney@sfsu.edu
Accepted 12 February 2019
© Author(s) (or their
employer(s)) 2019. No
commercial re-use. See rights
and permissions. Published
by BMJ.
ABSTRACT
In recent years, precision medicine has emerged
as a charismatic name for a growing movement
to revolutionise biomedicine by bringing genomic
knowledge and sequencing to clinical care. Increasingly,
the precision revolution has also included a new
paradigm called precision public health—part genomics,
part informatics, part public health and part biomedicine.
Advocates of precision public health, such as Sue
Desmond-Hellmann, argue that adopting cutting-edge
big data approaches will allow public health actors to
precisely target populations who experience the highest
burden of disease and mortality, creating more equitable
health futures. In this article we analyse precision public
health as a sociotechnical imaginary, examining how
calls for precision shape which public health efforts
are seen as necessary and desirable. By comparing the
rhetoric of precision public health to precision warfare,
we fnd that precision prescribes technical solutions to
complex problems and promises data-driven futures
free of uncertainty, unnecessary suffering and ineffcient
use of resources. We look at how these imagined
futures shape the present as they animate public health
initiatives in the Global South funded by powerful
philanthropic organisations, such as the Bill & Melinda
Gates Foundation, as well as local efforts to address
cancer disparities in San Francisco. Through our analysis
of the imaginary of precision public health, we identify
an emerging tension between health equity goals and
precision’s technical solutions. Using large datasets to
target interventions with greater precision, we argue,
fails to address the upstream social determinants of
health that give rise to health disparities worldwide.
Therefore, we urge caution around investing in precision
without a complementary commitment to addressing the
social and economic conditions that are the root cause of
health inequality.
INTRODUCTION
Since the completion of the Human Genome
Project well over a decade ago, researchers in the
biomedical sciences have sought to expand genomic
knowledge and sequencing into clinical care. These
efforts are driving what the biomedical sciences
refer to as a revolution in healthcare, first framed
as 'personalised medicine' and now as 'precision
medicine'. Precision medicine offers a vision for
how genomic and clinical data can be leveraged by
doctors to tailor treatment and prevention strate-
gies to a patient’s genome, environment and life-
style, especially—but not only—through advances
in pharmacogenomics. In recent years, calls for a
precision revolution have expanded to the realm of
public health, with key advocates arguing for the
benefits of applying the 'big data' approaches of
precision medicine to targeting public health prob-
lems in populations.
1
While some public health
experts argue that precision medicine constitutes
a 'distraction from low cost and effective popula-
tion-wide interventions and policies',
2
others advo-
cate for a new paradigm of 'precision public health'
(PPH). Building on existing data-driven approaches
in epidemiology and population health, PPH seeks
to mobilise state-of-the-art information technology
and data science to assess and improve health at
the population level.
3
Whereas precision medicine
emphasises the use of genomic data in clinical care,
PPH seeks to modernise public health surveillance
by integrating multiple datasets in order to respond
more efficiently to contain outbreaks, improve
health and prevent disease.
While epidemiological data (eg, surveillance
data, registries, infectious disease rates, surveys and
other data collection tools) has long been a crucial
aspect of public health research and practice, PPH
emphasises collecting and analysing real-time data
with increased granularity and harnessing this
knowledge in rapid response efforts. As Weeraman-
thri and colleagues state:
4
It is the combination of data-related skills and tech-
nologies (eg, in epidemiology, data linkage, informat-
ics and communications) and the ability to aggregate,
analyze, visualize and make available high quality data,
larger or linked, in closer to real time, that is at the
heart of PPH, much like epidemiology is at the heart
of traditional public health.
This big data approach to public health goes
beyond clinical and genomic data to include
social, environmental and behavioural factors that
contribute to differential rates of morbidity and
mortality in populations. Following recent trends
in public health such as 'digital epidemiology',
5
'infodemiology'
6
and 'digital pharmacovigilance',
7
PPH seeks to utilise unconventional datasets such
as internet search trends and cell phone GPS data
to identify and understand public health risk. This
is a far-reaching vision for what increased invest-
ment in data and data infrastructure can offer to
public health efforts. Kirsten Bibbins-Domingo
(Vice Dean for Population Health and Health
Equity at the University of California San Fran-
cisco (UCSF) School of Medicine) argues that PPH,
when fully realised, will 'telescope down' into the
genome, microbiome and epigenetic profiles of
individuals and then 'telescope back out' to look at
family, community and larger social/environmental
contexts.
8
For example, in the future, epigenetic
data could be brought together with environmental
data on air quality and epidemiological data on
asthma rates to address environmental justice issues
that disproportionately affect people of colour.
9