May 2020 PARENTS' EXPERIENCE CARING FOR CHILDREN WITH DRUG RESISTANT EPILEPSY by KATHLEEN BOREALE A Dissertation submitted to the Graduate School-Newark Rutgers, the State University of New Jersey in partial fulfillment of the requirements for the degree of Doctor of Philosophy Graduate Program in Nursing written under the direction of Thomas Loveless, PhD, Chair and approved by _______________________________________ ________________________________________ ________________________________________ _________________________________________ Newark, New Jersey