Research paper
When knowing is not enough: Emotional distress and depression
reduce the positive effects of health literacy on diabetes
self-management
Louise Schinckus*, Florence Dangoisse, Stephan Van den Broucke, Moïra Mikolajczak
Psychological Sciences Research Institute, Catholic University of Louvain, Louvain-la-Neuve, Belgium
A R T I C L E I N F O
Article history:
Received 6 March 2017
Received in revised form 7 August 2017
Accepted 8 August 2017
Keywords:
Diabetes
Health literacy
Self-efficacy
Depression
Distress
A B S T R A C T
Objectives: Adequate self-management activities are important predictors of diabetes outcomes. As
diabetes literacy and self-efficacy are strong predictors of diabetes self-care, self-management education
programs focus essentially on these factors. This study investigated whether emotional distress or
depression moderates the relation between health literacy, self-efficacy and diabetes self-care behaviors.
Methods: 128 people with type 2 diabetes were recruited in hospitals, through general practitioners and
via a diabetes website, and completed a questionnaire assessing health literacy, self-efficacy, diabetes-
related distress, depression and self-care behaviors.
Results: Multiple regression analysis confirms that health literacy and self-efficacy significantly predict
reported self-care behaviors. Additional regression analyses reveal that distress or depression do not
predict self-care behaviors directly, but moderate the effect of health literacy, which has a weaker impact
in patients experiencing distress or depression. In contrast, distress and depression do not moderate the
effect of self-efficacy on diabetes self-care behaviors.
Conclusion: Emotional distress, whether related to diabetes or not, prevents patients from acting on their
competence to perform adequate self-management behaviors.
Practice implications: Diabetes Professionals should pay more attention to the patients’ affective state and
its influence on self-care. Psychological support should be integrated in the care for people suffering from
type 2 diabetes.
© 2017 Published by Elsevier Ireland Ltd.
1. Introduction
Early diagnosis and appropriate management of type 2
diabetes significantly increase the chances of preventing harmful
and costly complications. Therefore, the care for patients with
diabetes focuses strongly on disease management. Because
managing diabetes requires extensive self-care, the capacities
of patients to manage their own illness and care process are
considered to be a key determinant of treatment outcomes [1].
The practice guide of the American Association of Diabetes
Educators [2] specifies seven self-care behaviors that are essential
for people with diabetes: (a) healthy eating, (b) being active, (c)
blood glucose monitoring, (d) taking medication, (e) problem
solving (e.g. when there is an obstacle to dietary compliance), (f)
healthy coping (e.g. speaking with friends or playing music to deal
with stress), and (g) changing behaviors that increase the risk of
developing diabetes complications (such as smoking or alcohol
consumption).
The patient’s adherence to the above-mentioned self-care
behaviors is critical to achieve better glycemic control and, thereby,
avoid complications associated to a poor diabetes control [3,4].
Understanding the factors that influence adherence is therefore of
utmost importance. As appears from the literature, a patient’s
adherence to the treatment is affected by several factors, both at
the patient level (e.g. health literacy, self-efficacy) and at the
provider or service level (e.g. organization of health services,
communication skills). The current paper focuses on three
individual factors that may impact on self-care behaviors for
diabetes, i.e., health literacy, self-efficacy, and emotional distress.
Recent studies have demonstrated the impact of these factors on
self-care behaviors separately, but to our knowledge, none has
examined the potential interactions between them. This study
* Corresponding author at: Psychological Sciences Research Institute, Université
catholique de Louvain, 10 Place Cardinal Mercier, 1348 Louvain-la-Neuve, bte
L3.05.01, Belgium.
E-mail address: schinckuslouise@gmail.com (L. Schinckus).
http://dx.doi.org/10.1016/j.pec.2017.08.006
0738-3991/© 2017 Published by Elsevier Ireland Ltd.
Patient Education and Counseling 101 (2018) 324–330
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