3 © Springer Nature Switzerland AG 2020
R. J. Stancliffe et al. (eds.), Choice, Preference, and Disability, Positive
Psychology and Disability Series, https://doi.org/10.1007/978-3-030-35683-5_1
Choice Availability and People
with Intellectual Disability
Roger J. Stancliffe
This chapter begins with a refection on the range of reasons why choice is impor-
tant. Defnitions of choice are considered next, including examination of common
misunderstandings of choice. Next, I describe and analyse major assessments of
choice availability, with attention to assessment involving self-reported choice ver-
sus choices reported by proxies. This section is followed by an examination of the
major research fndings concerning choice availability for adults with intellectual
disability. This chapter also engages with the under-researched topic of choice
within various types of relationships. Implementing choices with and without sup-
port is considered in the context of the implicit tension between autonomy-as-
independence and autonomy-as-volition (see chapter “The Development of
Choice-Making and Implications for Promoting Choice and Autonomy for Children
and Youth with Intellectual and Developmental Disabilities”). This chapter con-
cludes with a brief examination of ‘what works’: interventions that purport to
enhance choice availability. A number of the issues canvassed are examined in more
detail in other chapters of the book, so where appropriate, reference is made to the
relevant chapters.
Why Is Choice Important?
There are multiple reasons why choice is particularly important for and to people
with intellectual disability. First, people with disabilities themselves have stated
repeatedly that they want to control their own lives (Miller, Cooper, Cook, & Petch,
2008). As New Zealand self-advocate Robert Martin put it, ‘We want to live in a
community that encourages us to learn about decision-making and to take
R. J. Stancliffe (*)
Centre for Disability Research and Policy, The University of Sydney, Sydney, NSW, Australia
e-mail: roger.stancliffe@sydney.edu.au