Volume 1 • Issue 1 • 1000101
J Epilepsy
ISSN: 2472-0895 ELJ, an open access journal
Research Article Open Access
Paul et al., J Epilepsy 2015, 1:1
DOI: 10.4172/2472-0895.1000101
Research Article Open Access
Epilepsy Journal
E
p
i
l
e
p
s
y
J
o
u
r
n
a
l
ISSN: 2472-0895
Keywords: Psychosocial; Epilepsy; PWE
Introduction
Epilepsy is an episodic and chronic central nervous system
disorder characterized by unprovoked, recurrent seizures that may
afect physical, mental, or behavioral functioning [1]. A generalized
convulsion (i.e., a grand mal ft) is the most common recognized event.
Te seizures usually produce brief periods of disruption, which include
phenomena such as loss of consciousness, bodily distortion, injuries,
unusual and ofen frightening psychological experiences as well as
urinary and bowel incontinence [2]. Apart from the episodic seizures,
there are many other ever-present factors – social, educational, cultural
and so forth – which afect the quality of life (QOL) of people living
with epilepsy, their families and their close social networks variably [3].
However, very little study has been done on the quality of life of PWE
attending clinics in Lusaka.
Systematic studies on QOL in epilepsy from developing countries
are sparse [2] and Zambia is no exception to this trend. Clinicians tend
to address the patient’s and family’s perspective on the impact and
burden of epilepsy marginally; with a goal almost exclusively on seizure
control with minimal or no adverse medication efects [4]. However,
people with epilepsy also have to cope with psychological and social
consequences [5]. Clearly, comprehensive care needs to go beyond
this goal to enable the patients and their families to lead lives as free as
possible from the medical and psychosocial complications of epilepsy.
A better understanding of how satisfed people living with epilepsy are
with their lives is necessary if clinicians are to better help the patients
lead more fulflling lives [4].
Problem Statement
Te focus of treatment of PWE by clinicians has been almost
exclusively on seizure control with little or no attention paid to
the psychosocial impact the condition has on the patients whereas
the patients have to deal with such consequences of the disease on
themselves for most part of their daily lives than they spend having
the seizures themselves. Tis study will try to highlight this problem as
postulated in the hypothesis and will fnd out whether PWE attending
clinics in Lusaka are signifcantly afected in their quality of life by the
condition.
Rationale
Very little study has been done on the psychosocial impact of
epilepsy on PWE receiving treatment in Zambia. Tis has compounded
the neglect on this aspect of the patients’ life in the approach to
treatment. Tis study will highlight the impact of living with epilepsy
*Corresponding author: Ravi Paul, Department of Psychiatry, School of
Medicine, University of Zambia, Lusaka, Zambia, Tel: +260976744654;
E-mail: ravipaul35@gmail.com
Received September 07, 2015; Accepted November 17, 2015; Published
November 27, 2015
Citation: Paul R, Joyce S, Kusanthan T (2015) The Psychosocial Impact of Epilep-
sy; A Study on Adult People With Epilepsy Attending Clinics In Lusaka. J Epilepsy
1: 101. doi:10.4172/2472-0895.1000101
Copyright: © 2015 Paul R, et al. This is an open-access article distributed under
the terms of the Creative Commons Attribution License, which permits unrestricted
use, distribution, and reproduction in any medium, provided the original author and
source are credited.
Abstract
Background: Epilepsy is a chronic disease that affects different aspects of life. Few studies have measured,
using validated scales, the psychosocial impact of epilepsy in a general practice setting in Zambia.
Aim: To fnd out the quality of life in PWE attending clinics in Lusaka, and to fnd out various factors affecting
them
Method: A survey was undertaken of 50 subjects, with generalized or partial epileptic seizures aged 18 years
or more and drawn from epilepsy clinics in Lusaka. The outcome measure was the SF-31(Quality of Life in Epilepsy
Inventory-31).
Results: 38% of persons with active epilepsy had signifcantly low QOL due to their condition. Females had
lower QOL scores than males. Patients with higher levels of education had higher scores than their counterparts
with lesser education. People who had been ill for greater than 5 years had higher scores than those who had been
ill for a shorter duration. Those whose caregivers had a high income from salary job had higher scores than those
whose caregivers were unemployed.
Conclusion: The occurrence of seizures, even at low frequencies, is associated with psychosocial handicap,
and this may remain covert in general practice. Increased impairment in QOL was observed in female, less
educated patients with recent onset of seizures, and unemployed caregivers. Poor QOL in epilepsy refects social
underachievement and calls for programs to remedy their psychosocial circumstance and improve health service
provisions.
The Psychosocial Impact of Epilepsy; A Study on Adult People With
Epilepsy Attending Clinics In Lusaka
Ravi Paul
1*
, Sakala Joyce
2
and Thankian Kusanthan
3
1
Department of Psychiatry, School of Medicine, University of Zambia, Lusaka, Zambia
2
University Teaching Hospital, Lusaka, Zambia
3
Department of Gender Studies, School Humanities and Social Sciences, University of Zambia