The design of patient decision support interventions:
addressing the theory–practice gap
Glyn Elwyn BA MB BCh MSc PhD FRCGP,
1
Mareike Stiel,
2
Marie-Anne Durand PhD
3
and
Jacky Boivin PhD
4
1
Professor,
3
Research Associate, Clinical Epidemiology Interdisciplinary Research Group, Department of Primary Care and Public Health, School of
Medicine, Cardiff University, Heath Park, Cardiff, UK
2
Doctoral Candidate,
4
Professor, Cardiff Fertility Studies Research Group, School of Psychology, Cardiff University, Cardiff, UK
Keywords
decision aids, decision-making theory,
DESIs, operationalization
Correspondence
Professor Glyn Elwyn
Department of Primary Care and Public
Health
School of Medicine
Cardiff University
Heath Park
Cardiff CF14 4YS
UK
E-mail: elwyng@cardiff.ac.uk
Accepted for publication: 11 June 2010
doi:10.1111/j.1365-2753.2010.01517.x
Abstract
Background Although an increasing number of decision support interventions for patients
(including decision aids) are produced, few make explicit use of theory. We argue the
importance of using theory to guide design. The aim of this work was to address this
theory–practice gap and to examine how a range of selected decision-making theories could
inform the design and evaluation of decision support interventions.
Methods We reviewed the decision-making literature and selected relevant theories. We
assessed their key principles, theoretical pathways and predictions in order to determine
how they could inform the design of two core components of decision support interven-
tions, namely, information and deliberation components and to specify theory-based
outcome measures.
Results Eight theories were selected: (1) the expected utility theory; (2) the conflict model
of decision making; (3) prospect theory; (4) fuzzy-trace theory; (5) the differentiation and
consolidation theory; (6) the ecological rationality theory; (7) the rational–emotional model
of decision avoidance; and finally, (8) the Attend, React, Explain, Adapt model of affective
forecasting. Some theories have strong relevance to the information design (e.g. prospect
theory); some are more relevant to deliberation processes (conflict theory, differentiation
theory and ecological validity). None of the theories in isolation was sufficient to inform the
design of all the necessary components of decision support interventions. It was also clear
that most work in theory-building has focused on explaining or describing how humans
think rather than on how tools could be designed to help humans make good decisions. It
is not surprising therefore that a large theory–practice gap exists as we consider decision
support for patients. There was no relevant theory that integrated all the necessary contri-
butions to the task of making good decisions in collaborative interactions.
Discussion Initiatives such as the International Patient Decision Aids Standards Collabo-
ration influence standards for the design of decision support interventions. However, this
analysis points to the need to undertake more work in providing theoretical foundations for
these interventions.
Introduction
When Lewin proposed that ‘nothing is as practical as a good
theory’ he was emphasizing the value of hypothesis-led experi-
mentation to advance understanding [1]. When considering deci-
sion support interventions (DESIs) for patients (including decision
aids), there remains significant potential to improve our under-
standing of why and how they achieve their impact on patients’
knowledge and their participation in decision making [2]. Holmes-
Rovner et al. [3] and Nelson et al. [4] have questioned the overall
aims of ‘decision aids. Charles et al. has requested greater con-
ceptual clarity [5]. Achieving greater clarity about the relationship
between theory and practice in this field will help address a
number of outstanding debates about the relationship between
design, deliberation process and outcome measurement [4–10].
O’Connor et al. defined decision aids as: ‘interventions
designed to help people make specific and deliberative choices
among options by providing information about the options and
outcomes that are relevant to a person’s health status’ [11]. In
2009, Elwyn et al. went further and stated that: ‘DESIs help
Journal of Evaluation in Clinical Practice ISSN 1356-1294
© 2010 Blackwell Publishing Ltd, Journal of Evaluation in Clinical Practice 1