Bioethics ISSN 0269-9702 (print); 1467-8519 (online)
Volume 19 Number 4 2005
© Blackwell Publishing Ltd. 2005, 9600 Garsington Road, Oxford OX4 2DQ, UK
and 350 Main Street, Malden, MA 02148, USA.
Blackwell Publishing Ltd.Oxford, UK and Malden, USABIOTBioethics0269-9702Blackwell Publishing Ltd. 20052005194307322Articles HOW INFECTIOUS DISEASES GOT LEFT OUTLESLIE
P. FRANCIS ET AL.
HOW INFECTIOUS DISEASES GOT LEFT
OUT – AND WHAT THIS OMISSION
MIGHT HAVE MEANT FOR BIOETHICS
LESLIE P. FRANCIS, MARGARET P. BATTIN,
JAY A. JACOBSON, CHARLES B. SMITH, AND
JEFFREY BOTKIN
ABSTRACT
In this article, we first document the virtually complete absence of infectious
disease examples and concerns at the time bioethics emerged as a field. We
then argue that this oversight was not benign by considering two central
issues in the field, informed consent and distributive justice, and showing
how they might have been framed differently had infectiousness been at
the forefront of concern. The solution to this omission might be to apply
standard approaches in liberal bioethics, such as autonomy and the harm
principle, to infectious examples. We argue that this is insufficient, how-
ever. Taking infectious disease into account requires understanding the
patient as victim and as vector. Infectiousness reminds us that as auton-
omous agents we are both embodied and vulnerable in our relationships
with others. We conclude by applying this reunderstanding of agency to
the examples of informed consent and distributive justice in health care.
At the time bioethics emerged as a field – the period of the late
1950s through the 1970s – infectious disease was largely thought
to have been an area of medicine almost completely conquered.
In 1972, as we are now often reminded, the United States Surgeon
General opined, ‘It is time to close the book on infectious disease.’
1
In this article, we explore how the absence – or oblique and
1
This much-cited quotation apparently stems from a speech by William
Stewart, the Surgeon General in 1967. William H. Stewart. 1967. A Mandate
for State Action. Presented at the Association of State and Territorial Health
Officers, Washington, DC, Dec. 4, 1967. See http://pages.pomona.edu/
~nvh04747/Bio189L/intro.html#1 (accessed 15 May 2005); see also Margie