This article has been accepted for publication and undergone full peer review but has not been through the copyediting, typesetting, pagination and proofreading process which may lead to differences between this version and the Version of Record. Please cite this article as doi: 10.1002/pon.4873 This article is protected by copyright. All rights reserved. ORIGINAL ARTICLE Assessment of distress and quality of life in rare cancers Cristiane Decat Bergerot a,b , Paulo Gustavo Bergerot a,b , Errol J. Philip c , Edvane Birelo Lopes De Domenico b , Maria Fernanda Marcusso Manhaes b , Renata Nunes Pedras b , Meghan M Salgia a ; Nazli Dizman a , Kimlin Tam Ashing d , Min Li e , William Dale f & Sumanta K. Pal a a Department of Medical Oncology & Experimental Therapeutics, City of Hope Comprehensive Cancer Center, Duarte, CA, USA b Federal University of Sao Paulo, Sao Paulo, Brazil c The Notre Dame Laboratory for Psycho-Oncology Research, University of Notre Dame, Notre Dame, IL, USA d Department of Population Sciences, City of Hope Comprehensive Cancer Center, Duarte, CA, USA e Department of Biostatistics, City of Hope Comprehensive Cancer Center, Duarte, CA, USA f Department of Supportive Care Medicine, City of Hope Comprehensive Cancer Center, Duarte, CA, USA Running Head: Psychosocial distress and rare cancers Corresponding Author: Dr Sumanta K. Pal Department of Medical Oncology & Experimental Therapeutics 1500 East Duarte Road Duarte, CA, United States of America 91010 Phone: +1 (626) 256-4673 Fax: +1 (626) 301-8233 E-mail: spal@coh.org Total Text Page: 21 Tables: 2 Figures: 2 Funding: None