Isolated idiopathic chronic pancreatitis associated
with a compound heterozygosity for two mutations
of the CFTR gene
Marie-Pierre REBOUL (1), David LAHARIE (2), Michel AMOURETTI (2), Didier LACOMBE (1), Albert IRON (1)
(1) Service de Génétique Médicale, Hôpital Pellegrin, Bordeaux ; (2) Département d’Hépato-Gastroentérologie, Hôpital Haut-Levêque, Pessac.
SUMMARY
We report the case of a patient suffering from idiopathic chronic
pancreatitis (ICP) and compound heterozygous for mutations G542X
and S1235R of the cystic fibrosis transmembrane regulator (CFTR)
gene. The patient had normal sweat test and no other clinical sign
usually linked with a typical or moderate pathology (bronchiectasis,
nasal polyposis, congenital absence of the vas deferens) of the CFTR
gene. G542X is a severe mutation, which is usually found in classical
cystic fibrosis when associated with other severe mutations. S1235R
is a quite rare abnormality recently reported as being potentially
pathogenic when combined in trans with a second CF mutation.
Our case is quite similar to the only other six patients in the literature
in whom only the pancreas is affected and who bear a rare mutation
with moderate effect. The history and the clinical features of our
patient indicate an unambiguous isolated ICP in which the presence
of the S1235R mutation — in trans with regard to G542X — is likely
responsible for the ICP phenotype. This case could throw light on
some of the as yet poorly known abnormalities of the CFTR gene in
the ICP phenotype.
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Pancréatite chronique idiopathique isolée associée à une
hétérozygotie composite pour deux mutations du gène CFTR
Marie-Pierre REBOUL, David LAHARIE, Michel AMOURETTI,
Didier LACOMBE, Albert IRON
(Gastroenterol Clin Biol 2003;27:821-824)
Nous rapportons le cas d’un malade souffrant de pancréatite
chronique idiopathique (PCI) hétérozygote composite pour les
mutations G542X et S1235R du gène CFTR. Le malade avait un test
sudoral normal et pas d’autre signe clinique associé habituellement à
une affection (bronchectasie, polypose nasale, agénésie des canaux
déférent) associée aux mutations du gène CFTR. G542X est une
mutation sévère rencontrée assez fréquemment — en association
avec d’autres mutations sévères — dans des formes de mucovisci-
dose classique. S1235R est une anomalie assez rare, rapportée
récemment comme étant potentiellement délétère quand elle est
associée en trans à une autre mutation du gène CFTR. Notre cas est à
rapprocher des seuls six malades de la littérature dont l’atteinte
semble limitée au pancréas et porteurs d’une mutation rare à effet
modéré. L’histoire et le tableau clinique de la maladie chez notre
malade évoquent de manière complète et sans ambiguïté une PCI
isolée dans laquelle la présence de la mutation S1235R — en
position trans par rapport à G542X — est très vraisemblablement
responsable du phénotype de pancréatite chronique idiopathique.
Ce cas peut contribuer à une meilleure connaissance d’une certaine
spécificité d’anomalies — encore mal connues — du gène CFTR dans
le phénotype de PCI.
M
any patients suffering from typical cystic fibrosis
(CF; OMIM 219700) present with chronic pancre-
atitis secondary to pancreatic lesions similar to
those of idiopathic chronic pancreatitis (ICP) [1]. Attention has
recently been drawn to ICP patients without known etiology, and
the CFTR gene at chromosome 7q31.2 (OMIM 602421) has
been implicated in this disease. It would be preferable to
investigate only the fraction of patients (about 30%) whose
pathology is clearly recognized as recurrent acute pancreatitis or
ICP, thereby excluding patients suffering from secondary chronic
pancreatitis due to excessive alcohol consumption (i.e. about
70% of patients) and the familial autosomal dominant forms of
hereditary pancreatitis (1%) involving the gene encoding for the
cationic trypsinogen gene at chromosome 7q35 (HP; OMIM
167, 800) [2].
So far, the mutations and polymorphisms of the CFTR gene
have been analyzed in 10 cohorts of patients with chronic
pancreatitis [3-12]. Six of these series [4, 5, 7, 8, 11, 12]
included only patients with ICP, the other four [3, 6, 9, 10]
included patients with both ICP and alcoholic pancreatitis. The
majority of these studies show that, among ICP patients, the
frequency of CFTR gene mutations is significantly higher (18%
overall) than in the general population (4%). Most ICP patients
are heterozygous, and 14 are compound heterozygous for two
mutations of the CFTR gene.
We studied the CFTR gene in a 35-year-old male patient with
symptoms limited to the occurrence of iterative episodes of
idiopathic pancreatitis. He had an original compound heterozy-
gosity for the severe G542X mutation and the mild S1235R
mutation. Comparison of the genetic status and clinical pheno-
type of our patient with the 14 cases reported so far [4, 5, 7, 11,
12] would throw light on the implication of the CFTR gene in this
particular type of chronic pancreatitis.
Case report
A 33-year-old man was seen for painful epigastric syndrome
associated with high levels of serum pancreatic enzymes:
hyperamylasemia, 358 U/L (normal, 25-115); hyperlipasemia,
2460 U/L (normal, 114-286); hyperleucocytosis, 19.1 G/L
(normal, 4-10). CT scan and MRI confirmed the diagnosis of
acute pancreatitis (Balthazar stage E) with diffuse anomalies and
calcifications and with inflammatory lesions prevailing in the
small pancreas where there was duct dilatation. Cancer of the
pancreas and autoimmune pancreatitis were excluded by two
Reprints: A. IRON, Service de Génétique Médicale, UF de Biologie
Moléculaire, Hôpital Pellegrin-Tripode, 33076 Bordeaux Cedex, France.
E-mail: albert.iron@chu-bordeaux.fr
© Masson, Paris, 2003. Gastroenterol Clin Biol 2003;27:821-824
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