46 | Summer2016•Vol. 40
.
No. 2
GENERATIONS – Journal of the American Society on Aging
Copyright © 2016 American Society on Aging; all rights reserved. This article may not be duplicated, reprinted or
distributed in any form without written permission from the publisher: American Society on Aging, 575 Market
St., Suite 2100, San Francisco, CA 94105-2869; e-mail: info@asaging.org. For information about ASA’s publications
visit www.asaging.org/publications. For information about ASA membership visit www.asaging.org/join.
N
orth American attitudes toward the end
of life cluster around denial and avoidant
behaviors (Kearl, 1995); thus, preparations for
end of life often are wanting. If, as research
shows (The Conversation Project, 2016), the
uncomfortable issues surrounding life’s ending
are rarely discussed by families, it should be
no surprise that such topics fall outside the fuz-
zier boundaries of friendship discourse, with
its more sociable focus (Barker, 2002; Johnson,
1983). Such dynamics pose particular challenges
for those who stand outside of traditional family
structures, including LGBT older adults.
Anxieties Exist Over Late-Life
and End-of-Life Planning
As reported elsewhere and also in this journal,
LGBT older persons, especially gay men, dispro-
portionately reach the very later years without
partners, without children, without traditional
families—i.e., without those people typically
called upon to provide care or to participate in
end-of-life preparations (de Vries, 2013). Con-
comitantly, LGBT older adults report poorer
overall health (MetLife Mature Market Institute,
2010), higher rates of disability (Fredriksen-
Goldsen et al., 2011), and greater psychological dis-
tress (Wallace et al., 2011) than do heterosexual
persons of similar ages. As a result, LGBT older
adults may have higher needs for care and fewer
traditional resources for care provision in the
very later years than do heterosexual and gender-
conforming older persons. The importance of
preparing for later life and end of life arguably is
greater among LGBT persons—as is their anxiety
about these preparations.
Research supports this assertion. In a large,
national survey study, LGBT baby boomers, rel-
ative to those of comparable age in the general
population, were found more likely to fear dying
alone and dying in pain, particularly in settings
wherein LGBT rights are poorly defended (de
Vries et al., 2009)—which is how long-term-
care settings are viewed within this community
(SAGE, 2011). De Vries and colleagues (2009)
linked these fears—a type of unfortunate spur
abstract LGBT persons disproportionately reach later life without partners or children—the people
most likely to provide support to older adults, and to engage them in conversations about advance
care planning and end-of-life issues. Friends often rise to the challenges of caregiving, but with limits
imposed by family-centered social customs and family-first policies and practices. Friends often feel
unqualified to discuss advance care planning, or are not invited into such conversations. This dynamic,
these limits, and their consequences are the focus of this article, which summarizes the literature, with
examples drawn from the authors’ qualitative study. | key words: LGBT caregiving, families of choice,
advance-care planning, end-of-life discussions
End-of-Life Preparations
Among LGBT Older Adults
By Brian de Vries
and Gloria Gutman
LGBT elders tend to reach late life without
partners or children, making it doubly difficult
to engage in effective end-of-life planning.