Research Article Open Access
Ghimire, J Health Educ Res Dev 2017, 5:1
DOI: 10.4172/2380-5439.1000212
J
o
u
r
n
a
l
o
f
H
e
a
l
t
h
E
d
u
c
a
ti
o
n
R
e
s
e
a
r
c
h
&
D
e
v
e
l
o
p
m
e
n
t
ISSN: 2380-5439
Journal of
Health Education Research & Development
Volume 5 • Issue 1 • 1000212
J Health Educ Res Dev, an open access journal
ISSN: 2380-5439
Keywords: Stress; Coping; Parents; Children with congenital heart
disease
Introduction
A new baby is the beginning of wonders, hopes and dreams and
becoming parents is one of life’s greatest blessings. A parent’s dream of
giving birth to the perfect child but the birth of a child with congenital
heart disease challenges those dreams. Tis forces families to deal with
a crisis for which they may be completely unprepared. Discovering
one’s child has a disability causes major stress, this can disrupt the total
family functioning [1].
Congenital heart disease (CHD) is now estimated to be the
second most prevalent chronic illness may have efects that pervasive
consequence for family life. Recently, focused on resiliency variables,
especially support and coping strategy, regulating the impact of stress.
In the resiliency model of family stress, adjustment and adaptation,
social support is viewed as one of the primary mediators between stress
and well-being [2].
India has a large population with a perceived incidence of
congenital heart disease in 8 per 1000 live births in children; nearly
180,000 kids are born yearly with this problem. Of these 60,000 to
90,0000 are critical and need early treatment. Nearly 10% of the infant
mortality seen is due to congenital heart defects. As the number of
centers capable of handling this is very few, a huge number of children
are added to this pool each year of Congenital Heart Disease [3].
It can be a great burden for parents to be informed that their child
is sufering from heart disease. Te whole family might be afected and
might undergo a stressful adjustment process, experiencing challenges
such as attempting to understand the disease’s efects, coping with
uncertainty, and seeking reassurance from healthcare providers.
Experiences such as somatization, depression, anxiety, distress,
hopelessness, and social isolation can also arise. Mothers might also
feel guilt and might wrongly blame themselves or they might feel
frustration over not having a healthy baby. Tose who have multiple
children might additionally experience neglecting the healthy children
[4].
Parents of children with heart disease were more likely than the
normative population to report excessive parenting stress, especially
related to characteristics of the child that make them difcult to parent.
Tese parents expressed difculty with setting limits or discipline of
the child with heart disease. Parenting stress was related to the severity
of the child’s heart disease, family socioeconomic status, or time
since most recent surgery. Clinicians must assess parenting stress at
each health care visit to provide appropriate support and anticipatory
guidance to families of children with heart disease [5].
Te objectives of the present study were to fnd out the level of
stress and coping, to determine the relationship between stress and
coping among the parents of children with Congenital Heart Disease
and to fnd out the association of level of stress and level of coping with
selected socio demographic variables.
*Corresponding author: Pratima Ghimire, Nepal Medical College, Jorpati,
Kathmandu, Tel: 09779849231817;E-mail: ppratima071@gmail.com
Received November 11, 2016; Accepted March 07, 2017; Published March 10,
2017
Citation: Ghimire P (2017) Stress and Coping among the Parents of Children with
Congenital Heart Disease: A Hospital Based Study. J Health Educ Res Dev 5: 212.
doi: 10.4172/2380-5439.1000212
Copyright: © 2017 Ghimire P. This is an open-access article distributed under the
terms of the Creative Commons Attribution License, which permits unrestricted
use, distribution, and reproduction in any medium, provided the original author and
source are credited.
Abstract
Introduction: Congenital heart defects are the most common, pervasive and serious chronic illness of all congenital
malformations. The birth of a child can be stressful enough for many parents, turn into one of dashed joy and feeling of
distress so there may be necessary for parents to obtain enough support from health professionals.
Methods: A descriptive Correlational study was conducted among 142 parents of children with Congenital Heart
Disease attending Pediatric Medical Out Patient Department in Shahid Gangalal National Heart Center, Bansbari,
Kathmandu. Data were collected using pre-tested structured interview schedule in Nepali version. The obtained data
were analyzed by descriptive statistics (frequency, percentage, mean and standard deviation) and inferential statistics
(chi-square and Karl Pearson’s coeffcient of correlation).
Results: The fndings of the study revealed that near about three forth (71.8%) of parents had moderately level of
stress whereas 28.2% had low level of stress and 79.6% had moderately helpful level of coping and 20.4% had minimally
helpful level of coping. There was negative correlation between stress and coping (r=-0.076 and p-value=0.367) of
parents. There were no any statistical association between socio-demographic characteristics of parents and stress
level. Similarly, there were statistically signifcant association of level of coping with relationship with child, religion and
occupation of parents (p-value 0.004, 0.002 and 0.005) respectively.
Conclusion: The study concluded that with increased level of stress, there is decreased level of coping among
the parents. Further, the fndings suggest that health personnel must assess parenting stress at each visit to provide
appropriate support and anticipatory guidance to families of children with Congenital Heart Disease.
Stress and Coping among the Parents of Children with Congenital Heart
Disease: A Hospital Based Study
Pratima Ghimire*
Nepal Medical College, Jorpati, Kathmandu