W62 AJR:191, August 2008
clinically overt skeletal abnormalities but did
not thoroughly discuss the entire skeletal sys-
tem. In a review [1] of the cases of 41 patients
with RTS, 75% of the 20 patients who under-
went radiographic skeletal surveys were found
to have had skeletal abnormalities, whereas
only 20% had skeletal abnormalities apprecia-
ble at clinical examination alone. Limitations
of that study were that the skeletal surveys were
performed at various institutions and interpret-
ed by different radiologists and that the analy-
sis was based on the official diagnostic imaging
report, which may or may not have been issued
by a radiologist familiar with RTS.
Mutation of the RECQL4 gene was discov-
ered as a cause of RTS in 1998 [10]. Since then
it has been shown that approximately two
thirds of RTS patients have mutations in
RECQL4 [11]. The presence of mutations cor-
relates significantly with the development of
osteosarcoma. The exact function of the REC-
QL4 protein, particularly in relation to skele-
tal development, is not currently understood,
but the protein is believed to be important in
Radiographic Abnormalities in
Rothmund-Thomson Syndrome and
Genotype–Phenotype Correlation
with RECQL4 Mutation Status
Amy R. Mehollin-Ray
1
Claudia A. Kozinetz
2
Alan E. Schlesinger
1
R. Paul Guillerman
1
Lisa L. Wang
3
Mehollin-Ray AR, Kozinetz CA, Schlesinger AE,
Guillerman RP, Wang LL
1
Department of Radiology, Baylor College of Medicine,
The Edward B. Singleton Department of Diagnostic
Imaging, Texas Children’s Hospital, Houston, TX.
2
Department of Pediatrics, Baylor College of Medicine,
Houston, TX.
3
Texas Children’s Cancer Center, Department of
Pediatrics, Baylor College of Medicine, 6621 Fannin St.,
MC 3-3320, Houston, TX 77030. Address correspon-
dence to L. L. Wang (llwang@bcm.edu).
PediatricImaging•OriginalResearch
WEB
This is a Web exclusive article.
AJR 2008; 191:W62–W66
0361–803X/08/1912–W62
© American Roentgen Ray Society
R
othmund-Thomson syndrome
(RTS) is an autosomal recessive
disorder with heterogeneous clin-
ical features, including a charac-
teristic rash (poikiloderma), small stature,
sparse hair, juvenile cataracts, skeletal abnor-
malities including radial ray defects, and a
predisposition to osteosarcoma, a malignant
tumor originating in bone [1]. Rothmund [2]
described patients who had a rash and juvenile
cataracts, but unlike those patients, the pa-
tients described by Thomson [3] had osseous
abnormalities, including bilateral thumb apla-
sia and hypoplastic radii and ulnae. Subse-
quent case reports of RTS mentioned variable
skeletal abnormalities.
In a review of the world literature by Vennos
et al. [4] in 1992, 68% of patients were found to
have skeletal abnormalities, including frontal
bossing, saddle nose, small hands and feet, and
long-bone abnormalities, including radial ray
defects. Later publications focused on the oc-
currence of osteosarcoma in RTS patients
[5–9]. Most of these case reports described
Keywords: bone abnormality, RECQL4 mutation,
Rothmund-Thomson syndrome, skeletal dysplasia
DOI:10.2214/AJR.07.3619
Received January 6, 2008; accepted after revision
February 20, 2008.
Supported by National Institutes of Health grant NICHD
NIH-K08HD42136, a Doris Duke Charitable Foundation
Clinical Scientist Development Award, National
Institutes of Health grant NIH-RR000188-42 (BCM–
General Clinical Research Center), National Institutes of
Health grant NIH-HD024064 (BCM–Mental Retardation
Developmental Disabilities Research Center, Tissue
Culture Core), the Curtis Hankamer Basic Research Fund,
The Bone Disease Program of Texas Rolanette, and a
Berdon Lawrence Bone Research Award.
OBJECTIVE. The purpose of this study was to summarize the radiographic skeletal find-
ings in patients with Rothmund-Thomson syndrome (RTS) and to determine whether there is
an association between the presence of skeletal abnormalities and the mutational status of the
RECQL4 gene.
SUBJECTSANDMETHODS. Twenty-eight subjects with RTS underwent skeletal sur-
veys and RECQL4 DNA mutation testing. Radiographs were reviewed by two radiologists.
RECQL4 mutation testing by DNA sequencing of the gene was performed by a diagnostic labo-
ratory. Genotype–phenotype analysis by Fisher’s exact test was performed to investigate wheth-
er there was a correlation between mutation status and skeletal abnormalities.
RESULTS. Twenty-one (75%) of the subjects had at least one significant skeletal abnor-
mality, the more common being abnormal metaphyseal trabeculation, brachymesophalangy,
thumb aplasia or hypoplasia, osteopenia, dislocation of the radial head, radial aplasia or hy-
poplasia, and patellar ossification defects. Three subjects had a history of destructive bone
lesion (osteosarcoma). Genotype–phenotype analysis showed a significant correlation be-
tween RECQL4 mutational status and the presence of skeletal abnormalities ( p < 0.0001).
CONCLUSION. Skeletal abnormalities are frequent in persons with RTS. Many of these
abnormalities are not clinically apparent but are detectable on radiographs. The presence of skel-
etal abnormalities correlates with RECQL4 mutation status, which has been found to correlate
with risk of osteosarcoma. Skeletal surveys aid in both diagnosis and management of RTS.
Mehollin-Ray et al.
Radiography in Rothmund-Thomson Syndrome
Pediatric Imaging
Original Research
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