REVIEW ARTICLE
An international systematic review of dementia caregiving
interventions for Chinese families
Kris Pui Kwan Ma
1
| Anne Saw
2
1
Department of Family Medicine, University of
Washington, Seattle, Washington
2
Department of Psychology, DePaul
University, Chicago, Illinois
Correspondence
Kris Pui Kwan Ma, Department of Family
Medicine, University of Washington, 4225
Roosevelt Way NE, Suite 308, Box 354696,
Seattle, WA 98105, USA.
Email: krisma@uw.edu
Objectives: Older Asians and Chinese are among the least studied populations in the
dementia caregiving literature. This review seeks to critically synthesize the literature
on intervention characteristics, components and tailoring strategies for dementia
family caregivers in Chinese communities globally.
Methods: Five electronic databases (PsychINFO, PubMed, CINAHL, ScienceDirect and
Google Scholar) were searched for articles published between 1980 and July 2018.
The protocol of this review was registered with PROSPERO (CRD42019132800).
Results: Twenty-nine unique interventions across 39 papers met inclusion criteria.
Results from descriptive and thematic syntheses revealed that most interventions were
psychoeducational, CBT-based, multicomponent, structured, and less than a year in
duration. Disease education, management of behavioral and psychological symptoms
of dementia, stress coping techniques, and referral to community resources were fre-
quently included in interventions. Community-, culture- and language-focused strate-
gies were used to tailor interventions. The most common tailoring strategies were: (a)
using community networks and media for outreach and recruitment; (b) making transla-
tions and language adaptations to the intervention materials; and (c) focusing on trust
and therapeutic alliance. Most interventions produced desired outcomes, particularly
reducing caregiver burden and increasing self-efficacy.
Conclusions: To our knowledge, this is the first review to date that systematically
synthesized the characteristics and tailoring of dementia caregiving interventions for
Chinese families globally. Current findings suggest that most interventions are effec-
tive, although many only superficially address Chinese culture. Future research
should incorporate Chinese values and cross-cultural challenges into caregiving inter-
ventions for deep-level adaptations that could potentially be more effective to
engage and support Chinese caregivers.
KEYWORDS
Alzheimer's disease, caregiver, Chinese, culture, dementia
1 | INTRODUCTION
As the world population ages, the global prevalence of older adults
with dementia is expected to surge from 35.6 million in 2010 to
115.4 million in 2050.
1
The Chinese constitutes the world's largest
population, with 1.42 billion living in China and approximately 11
million living overseas.
2,3
In China alone, there were 9.5 million
older adults diagnosed with dementia in 2015, and this number is
expected to rise exponentially.
4
Given the progressive deteriora-
tion of functioning, intensive and expensive long-term care are
needed for individuals with dementia, placing potential burden on
family caregivers.
Received: 16 January 2020 Accepted: 8 August 2020
DOI: 10.1002/gps.5400
Int J Geriatr Psychiatry. 2020;1–22. wileyonlinelibrary.com/journal/gps © 2020 John Wiley & Sons Ltd 1