The value of reducing HIV stigma
Robert J. Brent
Department of Economics, Fordham University, 441 East Fordham Road, Bronx, NY 10458, USA
article info
Article history:
Received 23 March 2015
Received in revised form
6 January 2016
Accepted 9 January 2016
Available online 11 January 2016
Keywords:
HIV-stigma
Valuing benefits
Older people
abstract
HIV-stigma is a major reason why HIV continues to be a global epidemic. Interventions targeting HIV-
stigma are therefore necessary. To find an intervention that is worthwhile, a Cost-Benefit Analysis is
needed which compares costs and benefits. There are many documented costs of HIV-stigma. What is
missing is a valuation of the benefits of reducing HIV-stigma. The purpose of this paper is to present a
general method that can be used to value the benefits of stigma reduction programs. The method in-
volves estimating the marginal rate of substitution (MRS) between stigma and income in the utility
function of older people with HIV. To illustrate how our framework can be used, we applied it to a sample
of just over 900 people coming from the 2005-06 ROAH study (Research on Older Adults with HIV) in
New York City.
© 2016 Elsevier Ltd. All rights reserved.
1. Introduction
By the end of 2010 there were 1.2 million people in the US living
with HIV/AIDS. Between 2006 and 2009, the average number of
new infections in the US was between 48,600 and 56,000, see
UNAIDS (2011). UNAIDS call stigma a “social enabler”. UN Secretary
General, Ban Ki-Moon (2008) states that stigma is a chief reason
why the AIDS epidemic continues to devastate societies worldwide.
He argues that because of stigma people do not get tested and, if
tested and found positive, do not seek treatment. Dieffenbach and
Fauci (2009) report that treatment is now considered a major way
that HIV can be prevented. So by hindering treatment, HIV trans-
mission increases greatly because of the existence of stigma. The
adverse effect of stigma is clearest in the context of South Africa
where stigma leads many in affected areas to fail to accept that HIV
is the cause of increased deaths, see Taylor and Kvalsvig (2008).
Because HIV infection is an invisible health condition, HIV
stigma is directly linked to disclosure. If stigma is internalized, it
may make disclosure difficult, or even impossible. Once being HIV
positive is disclosed, it exposes the person to the risk of experi-
encing various negative stereotypes, prejudices and forms of
discrimination. In contrast to various other stigmatized health
conditions, HIV infection was believed in the 1990s in the US to be
acquired exclusively by stigmatized - and even criminalized - forms
of behavior. Historically, these were homosexual relationships of
men, the sharing of needles by illegal drug users, and men visiting
commercial sex workers. It is only relatively recently, since 2000,
that the general public became aware of the possibility of HIV
infection also by means of non-stigmatized forms of behavior, such
as heterosexual relations or transmission from mother to child. The
association of HIV infection with stigmatized forms of behavior,
however, still constitutes an integral part of the stigma related to
HIV, see Herek et al. (2002).
Michael Sidibe, the UNAIDS executive director, argues in his
introduction to UNAIDS (2012a) that stigma is undermining the HIV
response across the world and that this will continue until we make
major investments in programs that reduce such stigma. To judge
whether any investment would be worthwhile it is necessary to
carry out a Cost-Benefit Analysis (CBA) of stigma interventions.
Many effective interventions have been identified and UNAIDS
(2012b) has developed a tool for estimating the costs. But, we
need also to estimate the benefits to be able to fully evaluate the
potential programs. The purpose of this paper is to present a gen-
eral method that can be used to value the benefits of stigma
reduction programs in order that CBAs can be undertaken in the
future (to see how CBA is applied in the health care field refer to
Brent, 2015).
Although we will be focusing on HIV stigma, it is important to
recognize that stigma is a widespread phenomenon that prevents
access to services in many branches of the health care field. We give
five examples without claiming that we are in any way being
exhaustive. (i) Porter et al. (2009) report that stigma presents a
barrier to managing chronic illness by preventing people from
being tested, especially for TB. (ii) McSween (2002) shows that
E-mail address: brent@fordham.edu.
Contents lists available at ScienceDirect
Social Science & Medicine
journal homepage: www.elsevier.com/locate/socscimed
http://dx.doi.org/10.1016/j.socscimed.2016.01.014
0277-9536/© 2016 Elsevier Ltd. All rights reserved.
Social Science & Medicine 151 (2016) 233e240