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International Journal of Pediatric Otorhinolaryngology
journal homepage: www.elsevier.com/locate/ijporl
The child doesn't hear? On breaking bad news as perceived by parents and
audiologists
Miriam Geal-Dor
a,b,*
, Cahtia Adelman
a,b
a
Department of Speech and Hearing, Hadassah Hebrew University Medical Center, Israel
b
Department of Communication Disorders, Hadassah Academic College, Jerusalem, Israel
ARTICLE INFO
Keywords:
Child hearing loss
Breaking bad news
Questionnaire
ABSTRACT
Objective: The object of this study was to explore how parents experienced receiving the news of their child's
hearing loss, and how audiologists experienced the situation of conveying the diagnosis, in order to examine
improvements to the current process.
Method: A questionnaire regarding different aspects of breaking the news was developed. 48 Arabic and Hebrew
speaking parents of hearing impaired children answered the questionnaire. A similar questionnaire was filled out
by 31 audiologists.
Results: Findings demonstrate parents' general satisfaction with the manner in which the diagnosis was deliv-
ered.
According to the parents' reports, receiving the diagnosis evoked negative feelings of fear, depression and
difficulty believing the diagnosis. Parents' feelings were influenced by their cultural background, such as their
ethnic identity, religious practice and difficulties due to language barriers.
The audiologists described concern and anxiety when breaking bad news, but they felt they were able to
present the diagnosis. The audiologists felt that they were not trained in this aspect, and the ability was acquired
through experience.
Both parents and audiologists agreed that the audiologist should be the professional to deliver the diagnosis.
All emphasized sensitivity and professionalism as necessary qualities. Whereas audiologists were of the opinion
that the most important information to transmit was the type of hearing loss, the parents were most interested in
discussing their feelings, the rehabilitation process, and talking to other parents.
Conclusions: Overall, results reveal that breaking bad news of a child's hearing loss has been done fairly well.
Due to the parents' reports of the need for emotional support, it is suggested that audiologists receive further
training and adjust to personal and cultural differences. Recommendations include establishing an appropriate
setting and ensuring that an interpreter is available when necessary. Further emotional support may be provided
through establishment of a family support network.
1. Introduction
Perhaps one of the most challenging aspects of work as an audiol-
ogist is informing a family that their child has a hearing loss. Buckman
[1] defined bad news as any news that adversely and seriously affects
an individual's view of his or her future. More specifically Fitzpatrick
et al. [2] state that parents describe the hearing loss as a phenomenon
that not only affects the child, but changes the lives of the family and
affects decisions such as career, finances, and place of residence.
In the past, hearing loss was tested for in the high risk population or
when developmental milestones were delayed, or after failure in
screening tests in well baby clinics at the age of 7–9 months, and
therefore parents were somewhat prepared to receive news of hearing
impairment in their child.
Nowadays, with the implementation of newborn hearing screening
programs, Kurtzer-White & Luterman [3] raised the point that newborn
hearing screening promoted early identification and rehabilitation, but
may have left parents without enough support in the event of diagnosis
of hearing loss.
Parents reported emotional reactions of shock and grief upon di-
agnosis of hearing loss. The period immediately after detection of
hearing loss is perceived by parents as the most stressful. Furthermore,
the manner in which the news was conveyed influenced their approach,
for the long term, towards the hearing loss, the staff and the
https://doi.org/10.1016/j.ijporl.2018.06.044
Received 3 May 2018; Received in revised form 26 June 2018; Accepted 26 June 2018
*
Corresponding author. Audiology Department, Hadassah Medical Center, POB 1200, Jerusalem, Israel.
E-mail address: gmiriam@hadassah.org.il (M. Geal-Dor).
International Journal of Pediatric Otorhinolaryngology 112 (2018) 113–120
Available online 28 June 2018
0165-5876/ © 2018 Elsevier B.V. All rights reserved.
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