https://doi.org/10.1177/0009922817706142
Clinical Pediatrics
2017, Vol. 56(10) 902–908
© The Author(s) 2017
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DOI: 10.1177/0009922817706142
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Article
Introduction
The American Academy of Pediatrics recommends that
providers meet separately with adolescents during rou-
tine care.
1-3
Beginning in early adolescence, time spent
individually with patients helps build relationships
between teens and their health care providers, promotes
confidence in their ability to communicate their needs
and concerns, allows for confidential discussions of
health information, and sets the stage for increasing self-
management of chronic conditions.
3,4
Early adolescence
is also the recommended time to begin discussing and
preparing patients, both those with and without special
health care needs (SHCNs) for the eventual transition to
adult-oriented health care.
5-7
Health care transition
(HCT) has been called a “developmental milestone”
8
and should be part of every adolescent visit. Youth with
SHCNs
9
often need additional referrals and resources as
they transition care, but the same primary and preven-
tive guidelines
6
apply as for youth without SHCNs.
Consensus statements and recent literature about
HCT from pediatric to adult-oriented care suggest that
discussing future goals with the adolescent alone and
with family are important steps.
5-7
Discussion of realis-
tic future goals might include educational and vocational
goals,
5
plans for independent living,
5
and geographic
relocation and travel, all of which intertwine with plans
for self-management of health conditions and health
care.
4
Cogent to such discussion would be resources to
assist youth in accomplishing these goals, identification
of any potential limitations, or modification of plans for
health-related reasons. Motivational and behavior
change interventions could also be based on these mutu-
ally identified goals.
10,11
Particularly for youth with
SHCNs, practical, legal, and insurance ramifications of
the transition to adulthood and adult-oriented care can
affect the trajectory toward one’s goals. The legal
706142CPJ XX X 10.1177/0009922817706142Clinical PediatricsDavidson et al
research-article 2017
1
Children’s Hospital at Montefiore, Albert Einstein College of
Medicine, Bronx, NY, USA
2
Quinnipiac University, Hamden, CT, USA
Corresponding Author:
Lynn F. Davidson, Division of Academic General Pediatrics,
Children’s Hospital at Montefiore, 3444 Kossuth Avenue, 2nd Floor,
Bronx, NY 10467, USA.
Email: ldavidso@montefiore.org
Discussing Future Goals and Legal
Aspects of Health Care: Essential
Steps in Transitioning Youth to Adult-
Oriented Care
Lynn F. Davidson, MD
1
, Maya Doyle, LCSW-R, PhD
1,2
,
and Ellen J. Silver, PhD
1
Abstract
Discussing realistic future goals with the adolescent alone and with family, and reviewing legal aspects of health care
transition (HCT), are essential steps in the transition from pediatric to adult-oriented care. Secondary analysis of
datasets from 2 studies related to HCT assessed differences in provider practice for youth with and without special
health care needs (SHCNs). Across both datasets, between 57% and 68.6% of providers reported some discussion
of future goals with adolescent or with family. However, only 28.6% to 31% of providers reported discussing
future goals with youth with SHCNs alone. It was rare for providers to report discussing legal aspects of HCT
with any youth. Findings identify a gap in discussing future goals and legal aspects of HCT, as part of routine care
for adolescents. Additional research to understand barriers and improve likelihood of these steps within HCT is
needed.
Keywords
adolescent medicine, physician’s practice patterns, youth with special health care needs, health care transition,
adolescent alone