410.5
Experience of Children Undergoing During and After Bone Marrow
Transplantation Procedure
Derya Suluhan
1
, Ömer Kartal
1
, Dilek Yıldız
2
, Berna Eren Fidanci
2
,
Orhan Gürsel
1
1
Pediatrics, Gulhane Training and Research Hospital, Ankara, Turkey;
2
Department of Pediatric Nursing, Gulhane Medical Science University,
Ankara, Turkey.
Backgrounds: Bone marrow transplantation (BMT) involves a lenghty hos-
pital admission in an isolated environment to prevent infection and treatment
with high immunosupression followed infusions of donor bone marrow. Thus,
BMT has profound effect on the lives of children. There are many studies
about parents/caregivers’ experiences regarding own children’s bone marrow
transplantation/stem cell transplantation procedures. However, you can find
limited studies about children’s experiences in literature.
Aim: The aim of this study was to identify children’s experience undergoing
during and after BMT prosedures.
Methods: Using a qualitative descriptive desing, seven children, six boys
and one girl between 7 and 15 years, were interviewed. Subjects’ responses
were taped-recorded, transcribed verbatim and analysed by using content
analysis.
Finding: Themes emerged from in four categories; (i) changing life style
(family life, school life, amusement, activities), (ii) isolation, (iii) feeling and re-
actions (fear of painful procedure, frightening procedure), (iv) medical treat-
ment and side effect.
Conclusion: Pediatric nurses in transplantation unit are in a exellent position
to offer support and guidance to children undergoing BMT should encourage
them to explore experience during BMT procedure.
References:
1. Arpi Manookian, Alireza Nikbakht Nasrabadi, Monireh Asadi, Children's
lived experiences of hematopoietic stem cell transplantation, Nursing &
Health Sciences Volume 16, Issue 3, pages 314–320, September 2014.
2. Marta Tremolada, Sabrina Bonichini, Marta Pillon, Chiara Messina,
Modesto Carli, Quality of life and psychosocial sequelae in children undergoing
hematopoietic stem-cell transplantation: A review, Pediatric Transplantation
Volume 13, Issue 8, Version of Record online: 8 JUN 2009.
410.6
To Evaluate the Role of Print Media in Gaining Traction and
Promoting Community Engagement in Organ Donation by Regional
Organ & Tissue Transplant Organization (ROTTO), Post Graduate
Institute of Medical Education & Research (PGIMER), Chandigarh
A.K. Gupta
1
, Vipin Koushal
2
, Saryu Dinesh Madra
3
, Milan Kumar Bagla
4
1
Medical Superintendent cum Prof. & Head, Department of Hospital
Administration, Post Graduate Institute of Medical Education & Research
(PGIMER), Chandigarh, India;
2
Associate Professor, Department of
Hospital Administration, PGIMER & Nodal Officer, Regional Organ &
Tissue Transplant Organization (ROTTO), Chandigarh, India;
3
Consultant (IEC/Media), Regional Organ & Tissue Transplant
Organisation (ROTTO), Post Graduate Institute of Medical Education &
Research (PGIMER), Chandigarh, India;
4
Consultant (Data
Management), Regional Organ & Tissue Transplant Organization
(ROTTO), Post Graduate Institute of Medical Education & Research
(PGIMER), Chandigarh, India.
Introduction: India having increasing number of fatalities and road crashes
indicates a sorry state but also points towards the huge potential for organ do-
nation. Still very low rates of organ donation are due to the failure to turn many
potential donors into actual donors. Knowledge, socio-cultural views, and
awareness are important factors for the success of community engagement
in organ donation. There is an urgent need to gather this information about
the best suited public awareness strategy that can help fast track promotion
of Organ Donation among general community.
Method: A comparative study of print media stories on organ donation initia-
tives of PGIMER tracked in two years i.e. from 1st April 2015-31st March 2016
and from 1st April 2016 to 31st March 2017 was undertaken to gauge their im-
pact on community engagement.
Print media was selected for study for its better credibility, recall value and
reach among population of Chandigarh and around.
Results: For the year 1st April 2015-31st March 2016, around 60 print media
stories were tracked on organ donation/transplantation initiatives by PGIMER.
However, in the absence of proper media strategy, these stories appeared ba-
sis the specific journalist’s interest in the subject. For the year 1st April 2016 to
31st March 2017, a comprehensive media strategy was chalked out and on
the basis, proactive and positive media engagement was ensured through
consistent information sharing regarding initiatives on Organ Donation/
Transplantation by PGIMER. This resulted in over 600 stories in print tracked in
one year, leading to almost ten times increase in frequency and space coverage.
Other factors remaining same, the cadaver organ donations at PGIMER
from Ist April 2015-31st March 2016 were 27 which dramatically rose to 39
from 1st April 2016 to 31st March 2017.
Conclusion: Ensuring proactive and positive media engagement is crucial
to improve the knowledge on donation/transplantation among the population
and create an enabling environment, which eventually leads to community en-
gagement and hence, increase in cadaver organ donation rates. The ap-
proach further calls for comparative studies in other states to advance this
research line by examining the association between organ donation initia-
tives’ related media coverage and organ transplantation rates.
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