Phil. Trans. R. Soc. A (2010) 368, 3845–3858
doi:10.1098/rsta.2010.0142
e-Infrastructures supporting research
into depression, self-harm and suicide
BY S. MCCAFFERTY, T. DOHERTY, R. O. SINNOTT AND J. WATT*
National e-Science Centre, University of Glasgow, Glasgow G12 8QQ, UK
The Economic and Social Research Council (ESRC)-funded Data Management through
e-Social Sciences (DAMES) project is investigating, as one of its four research themes,
how research into depression, self-harm and suicide may be enhanced through the
adoption of e-Science infrastructures and techniques. In this paper, we explore the
challenges in supporting such research infrastructures and describe the distributed and
heterogeneous datasets that need to be provisioned to support such research. We describe
and demonstrate the application of an advanced user and security-driven infrastructure
that has been developed specifically to meet these challenges in an on-going study into
depression, self-harm and suicide.
Keywords: Data Management through e-Social Sciences (DAMES); e-Science; National
e-Infrastructure for Social Simulation (NeISS); SHIBBOLETH; portal
1. Introduction
Depression will affect one in five persons in Scotland at some stage in their lives
and is treatable in most cases (DAS 2009). Every day, around two persons die
of suicide in Scotland (ChooseLife 2003). Most people contemplating suicide do
not want to die; they simply want to stop the pain and difficulties they are
suffering. In 2002, the Scottish Executive launched a 10 year strategy and action
plan to prevent suicide in Scotland. Among the aims of the plan are to develop a
framework to ensure that action is taken both locally and nationally to encourage
people to seek help early and improve knowledge and awareness of ‘what works’ to
prevent suicide. To try to understand what predisposes individuals to suffer from
depression or to try to take their lives, researchers will typically want to look into
those individuals’ backgrounds (Borrell et al. 2002). For example, did individuals
seek medical help prior to an episode or before being admitted for self-harming
or indeed prior to taking their life? Were individuals previously in psychiatric
care? What was their household composition? Were they married? What was
their occupation and average household income (McLoone 1996; Rezaeian et al.
2006)? Did they excel in secondary education? Did they live with both parents
(Boyle et al. 2005; Boyle & Exeter 2007)? Did they suffer from any ailments or
have a history of drug taking? Is there a history of mental-health-related problems
in their family? Did they live within the vicinity of a park or other recreational
space? Are there any correlations between mental-health problems and ethnicity
*Author for correspondence (j.watt@nesc.gla.ac.uk).
One contribution of 16 to a Theme Issue ‘e-Science: past, present and future I’.
This journal is
©
2010 The Royal Society 3845