Page 1/25 A conceptual framework to develop a patient-reported questionnaire on the cystic ｦbrosis care pathway in France: the ExPaParM collaborative study Dominique Pougheon (  dominique.pougheon-bertrand@univ-paris13.fr ) Université Sorbonne Paris Nord: Universite Sorbonne Paris Nord https://orcid.org/0000-0002-1241-2753 Agathe Fanchini USPN: Universite Sorbonne Paris Nord Pierre Lombrail USPN: Universite Sorbonne Paris Nord Gilles Rault USPN: Universite Sorbonne Paris Nord Audrey Chansard USPN: Universite Sorbonne Paris Nord Nicolas Le Breton USPN: Universite Sorbonne Paris Nord Cecile Frenod USPN: Universite Sorbonne Paris Nord Fanny Milon USPN: Universite Sorbonne Paris Nord Christine Heymes-Royer USPN: Universite Sorbonne Paris Nord David Segretain USPN: Universite Sorbonne Paris Nord Marion Silber USPN: Universite Sorbonne Paris Nord Sophie Therouanne CHRU de Lille: Centre Hospitalier Universitaire de Lille Julie Haesebaert Lyon 1 University: Universite Claude Bernard Lyon 1 Cathy Llerena Grenoble Alpes University Hospital: Centre Hospitalier Universitaire Grenoble Alpes Philippe Michel Lyon 1 University: Universite Claude Bernard Lyon 1 Quitterie Reynaud Lyon 1 University: Universite Claude Bernard Lyon 1