Ethnicity and self-reported experiences of stigma in
adults with intellectual disability in Cape Town,
South Africa
A. Ali,
1
E. Kock,
2
C. Molteno,
3
N. Mfiki,
4
M. King
1
& A. Strydom
1
1 Division of Psychiatry, University College London, London, UK
2 Western Cape Forum for Intellectual Disability, Alexandra Hospital, Maitland, South Africa
3 Department of Psychiatry and Mental Health, University of Cape Town, Groote Schuur Hospital, Observatory, South Africa
4 Alexandra Hospital, Maitland, South Africa
Abstract
Background Studies have shown that individuals
with intellectual disability (ID) are aware of stigma
and are able to describe experiences of being treated
negatively. However, there have been no cross-
cultural studies examining whether self-reported
experiences of stigma vary between ethnic groups.
Method Participants with mild and moderate ID
were recruited from a number of different settings
in Cape Town, South Africa. Self-reported experi-
ences of stigma in three ethnic groups were meas-
ured using the South African version of the
Perceived Stigma of Intellectual Disability tool,
developed by the authors. One-way was used
to test whether there were differences in the total
stigma score between the ethnic groups. Regression
analysis was performed to identify factors associated
with stigma.
Results A total of participants agreed to take
part; were Black, were of mixed ethnicity and
were Caucasian. There were no differences in
the levels of stigma reported by the three groups but
the Black African ethnic group were more likely to
report being physically attacked and being stared at,
but were also more likely to report that they
thought they were ‘the same as other people’. There
was an interaction effect between ethnicity and level
of ID, with participants with mild ID from the
Black African group reporting higher levels of
stigma compared with those with moderate ID.
Younger age was the only factor that was associated
with stigma but there was a trend towards ethnicity,
additional disability and socio-economic status
being related to stigma.
Conclusion Interventions should target the Black
African community in South Africa and should
include the reduction of both public stigma and
self-reported stigma.
Keywords discrimination, ethnicity, intellectual
disability, negative attitudes, stigma
Introduction
Conceptualising stigma
People with intellectual disability (ID) are one of
the most stigmatised and excluded groups in society
(European Union Monitoring and Advocacy
Program ) and are more likely to be subjected
to physical violence compared the general popula-
tion (Hughes et al. ). The conceptualisation of
Correspondence: Dr Afia Ali, Division of Psychiatry, University
College London, nd Floor, Charles Bell House, - Riding
House Street, London WW EY, UK (e-mail: afia.ali@ucl.ac.uk).
Journal of Intellectual Disability Research doi: 10.1111/jir.12158
pp –
530
© MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and
John Wiley & Sons Ltd