Open Access. © 2020 Claudia Dinand, Margareta Halek, published by De Gruyter. This work is
licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 License.
https://doi.org/10.1515/9783110677485-002
2 Challenges in interacting with people
with dementia
Claudia Dinand, Margareta Halek
Abstract: Adequate and mutual interaction is a key factor for a good and stable rela-
tionship between people with dementia and their carers and a prerequisite for living
well with dementia. The dominant features of dementia include cognitive impairment
and behavioral changes in people with dementia, often referred to as “challenging”.
Whether communication is successful or not depends, on the one hand, on the type
and degree of cognitive impairment and the skills and resources available to people
with dementia and, on the other hand, on the ability of the environment to interpret
and understand the utterances and the meaning of the behavior.
In the first part of this essay we begin with a description of the different concepts
of challenging behavior and their theoretical assumptions and backgrounds. We then
describe the particularities of the nursing perspective and show the state of the art
in caring for people with dementia with challenging behavior. We will also consider
current evidence on the different views on the phenomenon facing the perspective of
professionals, family carers and people with dementia themselves.
In the second part, we alternately describe and reflect on a very short sequence of
a micro interaction of a couple at home during a meal. With regard to current theoret-
ical discussions, the example gives a first impression of the tiny, situational and com-
plex interactional attunements and underlines the need for sensitive communication
skills of people caring for people with dementia.
2.1 Introduction
Dementia has an enormous impact on daily living of people with this disease and for
all surrounding them. One of the most prominent challenges in dealing with demen-
tia is the creation of an appropriate and effective interaction. The dementia process
causes direct communication impairments due to pathological changes in particular
brain regions (e. g. anomia, aphasia, impairments in motor performance of speech).
But the major part of communication and interaction problems is a result of misad-
justment between dementia related impairments, available capabilities of the person
with dementia and the competency of the environment to deal with the communica-
tion difficulties.
One of a dominant characteristic associated with dementia are, along with cog-
nitive impairments, the changes in behavior of people with dementia. The prevalence
of behavioral symptoms of people with dementia living at home is 53 % in Germany
(Teipel et al. 2015; Thyrian et al. 2015) and between 11–90 % international (Borsje et al.
2014). Behavioral changes are one of the first signs of dementia and they accompany