https://doi.org/10.1177/1550059420953735
Clinical EEG and Neuroscience
1–5
© EEG and Clinical Neuroscience
Society (ECNS) 2020
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DOI: 10.1177/1550059420953735
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Case Report
Introduction
Childhood drug-resistant epilepsy (DRE) imposes a signi-
ficant health burden on family and therapeutic challenges to
physicians.
1
Children with DRE are referred to comprehensive
epilepsy centres for presurgical evaluation wherein they are
subjected to an odyssey of investigations such as video electro-
encephalographies (EEG), high-resolution magnetic resonance
imaging (MRI), functional, metabolic imaging and other
modalities, which may often prove noncontributory.
2
DRE in
childhood often manifests as epileptic encephalopathy (EE)
with its physical, psychomotor, social comorbidities, and may
have structural or genetic causes.
3
While most genetic general-
ized epilepsy syndromes of adolescence and adulthood such as
epilepsy with generalized tonic-clonic seizures (GTCS) only,
juvenile myoclonic and juvenile absence epilepsies portend
favorable therapeutic response, the same may not hold true
for early childhood onset forms. Original descriptions of
“severe idiopathic” generalized epilepsy of infancy with GTCS
suggested a genetic basis.
4,5
With the availability of viable
commercially available epilepsy gene panels and multiplex
ligand protein amplification probes, there has been a steady
increase in the genetic diagnosis of a number of complex
childhood epilepsy syndromes.
3
Genetic testing is, however,
953735EEG XX X 10.1177/1550059420953735Clinical EEG and NeuroscienceJukkarwala et al
case-report 2020
1
Geetanjali Medical College & Hospital, Udaipur, Rajasthan, India
2
Sree Chitra Tirunal Institute for Medical Sciences & Technology,
Trivandrum, Kerala, India
Corresponding Author:
Ramshekhar N. Menon, Department of Neurology, R Madhavan Nayar
Centre for Comprehensive Epilepsy Care, Sree Chitra Tirunal Institute for
Medical Sciences and Technology, Medical College PO, Trivandrum 695011,
Kerala, India.
Email: rsnmenon@sctimst.ac.in
Electroclinical Phenotype-Genotype
Homogeneity in Drug-Resistant “Generalized”
Tonic-Clonic Seizures of Early Childhood
Anis Jukkarwala
1
, Ramshekhar N. Menon
2
, E. R. Sunesh
2
,
and Ashalatha Radhakrishnan
2
Abstract
Purpose. Children with refractory focal to bilateral tonic-clonic seizures, despite normal high-resolution imaging, are often
not subjected to genetic tests due to the costs involved and instead undergo multimodality presurgical evaluation targeted at
delineating a focal onset. The objective of this study was to ascertain genotype-phenotype correlations in this group of patients.
Method. An online hospital database search was conducted for children who presented in 2019 with drug-resistant epilepsy
dominated by nonlateralizing focal-onset/rapid generalized (bilateral) tonic-clonic seizures (GTCS), subjected to presurgical
evaluation and subsequent genetic testing due to absence of a clear focus hypothesis. Results. Phenotypic homogeneity was
apparent in 3 children who had onset in infancy with drug-resistant GTCS (predominantly unprovoked and occasionally fever
provoked) and subsequent delayed development. 3-Tesla magnetic resonance imaging (MRI) scans were negative and video
EEG documented a homogeneous pattern of multifocal and/or generalized epileptiform discharges with phenomenology
favoring probable focal-onset/generalized-onset bilateral tonic-clonic seizures. All 3 tested positive for SCN1A gene variants
(heterozygous missense substitution variants in 2 children, one of which was novel and a novel duplication in one that led
to frameshift and premature truncation of the protein), suggestive of SCN1A-mediated epilepsy. This electroclinical profile
constituted 3 out of 25 patients with SCN1A-epilepsy phenotypes at our center. Conclusions. These cases suggest that children
with early-onset drug-resistant “generalized” epilepsy are likely to have a genetic basis although the presentation may not be
typical of Dravet syndrome. Hence, genetic testing for SCN1A variants is recommended in children with drug-resistant MRI
negative focal-onset/generalized-onset bilateral tonic-clonic seizures before subjecting them to exhaustive presurgical workup
and to guide appropriate treatment and prognostication.
Keywords
drug-resistant epilepsy, genetics, generalized tonic clonic seizures, SCN1A, EEG
Received March 13, 2020; revised June 24, 2020; accepted August 3, 2020.