Dissemination of Patient Navigation Programs
Across the United States
Nancy Hedlund, MBA, RPh; Betsy C. Risendal, PhD; Heather Pauls, BA; Patricia A. Valverde, MPH;
Elizabeth Whitley, PhD, RN; Angelina Esparza, MPH, RN; Emily Stiehl, PhD; Elizabeth Calhoun, PhD, MEd
Objective: To use diffusion and dissemination frameworks to
describe how indicators of economic and health care disparity
affect the location and type of patient navigation programs.
Methods: A cross-sectional national Web-based survey
conducted during 2009-2010 with support from 65 separate
national and regional stakeholder organizations. Participants:
A total of 1116 self-identified patient navigators across the
United States. Main Outcome Measure: The location and
characteristics of patient navigation programs according to
economic and health care disparity indicators. Results: Patient
navigation programs appear to be geographically dispersed
across the United States. Program differences were observed in
navigator type, population served, and setting by poverty level.
Programs in high-poverty versus low-poverty areas were more
likely to use lay navigators (P < .001) and to be located in
community health centers and agencies with religious affiliations
(50.6 vs 36.4%, and 21.5% vs 16.7%. respectively; P ≤ 0.01).
Conclusion(s): Results suggest that navigation programs have
spread beyond initial target inception areas and also serve as a
potentially important resource in communities with higher levels
of poverty and/or relatively low access to care. In addition, while
nurse navigators have emerged as a significant component of
the patient navigation workforce, lay health navigators serve a
vital role in underserved communities. Other factors from
dissemination frameworks may influence the spread of
navigation and provide useful insights to support the
dissemination of programs to areas of high need.
KEY WORDS: access, disparity, patient navigator, poverty,
zip code
J Public Health Management Practice, 2014, 20(4), E15–E24
Copyright
C
2014 Wolters Kluwer Health | Lippincott Williams & Wilkins
Patient navigation has emerged over the past 2
decades as an important strategy for reducing health
disparities in the United States.
1
Health disparities
are defined by the National Institutes of Health as,
differences in the burden of disease as evidenced by
disparities in incidence, prevalence, and mortality
rates among specific groups.
2
Such disparities result
not only in excess rates of disease and human suffering
for individuals but also impose indirect costs on both
public programs and purchasers of private health
insurance. The Urban Institute estimates that over the
10-year period from 2009 to 2018, health disparities
will cost the US health care system approximately
$337 billion, as the proportion of elderly Latinos and
African Americans increases.
3
The role of a patient navigator is to provide indi-
vidualized assistance to vulnerable patients in order to
overcome barriers and facilitate timely access to care.
Patient navigators’ ability to address health disparities
is well-recognized, especially in the context of improv-
ing the uptake and follow-through of cancer-related
screenings.
4
For example, navigation has been shown
to reduce the time interval between an initial abnormal
test result and the follow-up diagnostic resolution
and initiation of treatment, where malignancy is
diagnosed.
5-13
Those most at risk for advanced stage
Author Affiliations: University of Illinois at Chicago (Mss Hedlund and Pauls and
Drs Stiehl and Calhoun); Colorado School of Public Health, University of Colorado
Denver (Dr Risendal and Ms Valverde), Denver Health, Denver, Colorado
(Dr Whitley); and American Cancer Society, Atlanta, Georgia (Ms Esparza).
This study was funded by NCI 5 U01 CA 116903.
The authors thank Richard Barrett, PhD, for guidance with geolytical exploration
techniques.
Supplemental digital content is available for this article. Direct URL citations
appear in the printed text and are provided in the HTML and PDF versions of this
article on the journal’s Web site (www.JPHMP.com).
The authors declare no conflicts of interest.
Correspondence: Nancy Hedlund, MBA, RPh, School of Public Health, Univer-
sity of Illinois at Chicago, 1603 W Taylor St, Chicago, IL 60612 (Nhedlu2@uic.edu
mailto).
DOI: 10.1097/PHH.0b013e3182a505ec
Copyright © 2014 Lippincott Williams & Wilkins. Unauthorized reproduction of this article is prohibited.
E15