221
A study to define: profound
and multiple learning
disabilities (PMLD)
GARY BELLAMY University of Sheffield, UK
LIZ CROOT University of Sheffield, UK
ALICK BUSH Sheffield Health and Social Care
NHS Foundation Trust,UK
HILARY BERRY Sheffield Health and Social Care
NHS Foundation Trust,UK
ANTOIN SMITH Sheffield Health and Social Care
NHS Foundation Trust,UK
Abstract This study aimed to define the term ‘profound and
multiple learning disabilities’ (PMLD). A shared understanding of
terminology or diagnostic terms describing groups of individuals
is important for the purposes of strategic development, service
planning, and the provision and equity of service delivery.
A literature review provided different definitions and meanings
associated with the term. The meaning attributed to the definitions
was explored in focus groups and individual interviews (face to
face and telephone) with service managers, commissioners,
practitioners, frontline healthcare staff and family carers who
provide services, support and care for people with PMLD. Further
iterative discussions were held with a smaller group over the
precise wording of the chosen definition to ensure there was a
shared and common understanding. Personal characteristics for the
purpose of this study are defined as diagnoses, disabilities,
impairments, activity restrictions and other characteristics which
represent a person with PMLD.
Keywords definitions; PMLD; profound and multiple learning
disabilities; service delivery
Background and literature review
The term ‘profound and multiple learning disabilities’ (PMLD) is now
commonly used to describe a person with severe learning disabilities who
article
Journal of
Intellectual Disabilities
© The Author(s), 2010
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vol 14(3) 221‒235
issn 1744-6295(386290)
doi: 10.1177/1744629510386290