Rehabilitation Psychology
2011. Vol. 56. No. 3. 243-250
© 2011 American Psychological Association
0090-5550/11/$I2.00 DOI: 10.l037/a0024465
Development and Validation of the Caregiver Empowerment Scale:
A Resource for Working With Family Caregivers of Persons With
Traumatic Brain Injury
Charles Edmund Degeneffe
San Diego State University
Laura Dunlap
ACT Medical Group, Raleigh-Durham, North Carolina
Fong Chan
University of Wisconsin-Madison
David Man
Hong Kong Polytechnic University
Connie Sung
University of Wisconsin-Madison
Objective: To use multitrait analysis to determine the measurement structure of the Caregiver Empow-
erment Scale (CES). Participants: An American sample of 87 adult primary family caregivers of persons
with traumatic brain injury (TBI). Resutts: A four-factor structure was identified including factor 1
(Advocacy Self-Efficacy), factor 2 (Community Self-Efficaey), factor 3 (Caregiver Self-Efficacy), and
factor 4 (Personal Self-Efficacy). Conctusions: The CES provides clinicians and researchers a means to
assess self-perceived coping abilities of family caregivers of persons with TBI.
Keywords: traumatic brain injury, family, empowerment, caregiving, social support
Families of persons with traumatic brain injury (TBI) are often
presented with substantial and extended caregiving responsibili-
ties. Families provide an extensive array of both affective as well
as instrumental forms of care, such as assistance with emotional
well-being and behavioral management (Degeneffe, 2001). In the
immediate post-TBI phase, families are propelled into the world of
hospitals, rehabilitation centers, and other acute-care settings
(Bishop, Degeneffe, & Mast, 2006), and longer term, often find
themselves presented with the bulk of caregiving responsibilities.
This is often due to the fact that short- and not long-term profes-
sional supports are available to persons with TBI (Kolakowsky-
Hayner, Miner, & Kreutzer, 2001), and persons with TBI fre-
quently experience the loss of friends and other social contacts
(Kendall, 2003).
The nature of family caregiving can be extensive, including
providing support in such areas as daily living skills training,
medication management (Eames, Haffey, & Cope, 1990), and
This article was published Online First July 25, 2011.
Charles Edmund Degeneffe, Department of Administration, Rehabilita-
tion, and Postsecondary Education, San Diego State University; Fong Chan
and Connie Sung, Department of Rehabilitation Psychology and Special
Education, University of Wisconsin-Madison; Laura Dunlap, ACT Med-
ical Group, Raleigh-Durham, North Carolina; David Man, Department of
Rehabilitation Sciences, Hong Kong Polytechnic University, Hong Kong,
China.
Correspondence concerning this article should be addressed to Charles
Edmund Degeneffe, PhD, CRC, ACSW, Rehabilitation Counseling Pro-
gram, Department of Administration, Rehabilitation, and Postsecondary
Education, San Diego State University, Interwork Institute, 3590 Camino
del Rio North, San Diego, CA 92108. E-mail: cdegenef@mail.sdsu.edu
behavior modification (Rosenthal, 1989). Potentially, all members
of the family system can assume a caregiving role (Degeneffe,
2001), including those both in and outside the injured family
member's residence (e.g., Degeneffe & Burcham, 2008). The
assumption of a caregiver role can result in the inability of family
members to attend to other life roles (Serio, Kreutzer, & Witol,
1997) and maintain their social networks (Douglas & Spellacy,
1996).
Extant research on families of persons with TBI finds they
frequently face elevated levels of burden, stress, and depression
due to the extensive and chronic nature of TBI care (Chronister &
Chan, 2006; Chronister, Chan, Sasson-Gelman, & Chiu, 2010;
Degeneffe, 2001). For example, Gan, Campbell, Gemeinhardt, and
McFadden (2006) studied family functioning following TBI as
experienced by 148 family members of 66 persons with TBI in
Toronto, Canada. Gan et al. found that compared to a normative
sample on the General Scale of the Family Assessment Measure-
Ill (Skinner, Steinhauer, & Santa-Barbara, 1983), participants
demonstrated greater levels of distressed family functioning. An
overall conclusion of TBI family caregiving research finds they
face chronically high distress levels, (Kreutzer, Marwitz, & Ke-
pler, 1992), compared to outcomes for other populations such as
aging family caregivers of persons with intellectual disabilities,
where family caregivers experienced less distress over time
(Greenberg, Seltzer, & Greenley, 1993).
In response to these findings, recent studies ask families to
identify what they need to best adjust and cope with caregiving
demands. Based on a comprehensive literature review of common
needs endorsed by families of persons with TBI through instru-
ments like the Family Needs Questionnaire (Kreutzer & Marwitz,
1989), Bishop and associates (2006) concluded the most common
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