Open Access Maced J Med Sci. 2022 Jun 15; 10(E):1623-1629. 1623 Scientifc Foundation SPIROSKI, Skopje, Republic of Macedonia Open Access Macedonian Journal of Medical Sciences. 2022 Jun 15; 10(E):1623-1629. https://doi.org/10.3889/oamjms.2022.8573 eISSN: 1857-9655 Category: E - Public Health Section: Public Health Education and Training The Sufering Experiences: Family Caregiver of Home Based Palliative Care in Malaysia Wanda Kiyah George Albert 1 * , Adi Fahrudin 2 , Steward Lindong 3 , Husmiati Yusuf 4 1 Social Work Program, Faculty of Psychology and Education, Universiti Malaysia Sabah, Kota Kinabalu, Sabah, Malaysia; 2 Department of Psychology, Faculty of Psychology, Universitas Bhayangkara Jakarta Raya, Indonesia, Associate Research Fellow, The Psychology and Social Health Research Unit Universiti Malaysia Sabah, Malaysia and Visiting Professor, Institute of Social Work Research, Japan College of Social Work, Tokyo, Japan; 3 Hospital Chancellor Tuanku Muhriz, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia; 4 National Research and Innovation Agency, Jakarta, Indonesia Abstract BACKGROUND: Caring for a family member who has advanced cancer and is nearing the end of their life comes with a slew of concerns and obstacles for the caregiver. A thorough understanding of the hardships and tribulations of caregiving may be a step toward resolving the issues that these patients’ family caregivers confront. AIM: The present study aimed to explore the sufering experienced faced by Malaysian family member who has advanced cancer and is nearing the end of their life. MATERIALS: The present qualitative study was conducted through in-depth semi-structured interviews held with seven family caregivers of cancer patients selected through purposive sampling. Interviews continued until the saturation of data. All interviews were recorded, transcribed, and analyzed through conventional content analysis. RESULTS: The codes extracted from interviews produced fve main themes, including empathic sufering, powerless and hopeless sufering, predictive sufering, compliance sufering, and barriers’ wrath, which collectively caused sufering for family caregivers. CONCLUSION: Care provided in an atmosphere of sufering and discontent diminishes the caregiver’s quality of life and quality of patient care. Health planners should therefore consider the challenges and suferings faced by family caregivers and should seek to obviate them through plans. Edited by: https://publons.com/researcher/391987/ mirko-spiroski/ Citation: Albert WKG, Fahrudin A, Lindong S, Yusuf H. The Sufering Experiences: Family Caregiver of Home Based Palliative Care in Malaysia. Open Access Maced J Med Sci. 2022 Jun 15; 10(E):1623-1629. https://doi.org/10.3889/oamjms.2022.8573 Keywords: Family caregivers; Patients with cancer; Challenges; Caregiving *Correspondence: Wanda Kiyah George Albert, Social Work Program, Faculty of Psychology and Education, Universiti Malaysia Sabah, Kota Kinabalu, Sabah, Malaysia. E-mail: wanda@ums.edu.my Received: 09-Jan-2022 Revised: 14-Feb-2022 Accepted: 02-Mar-2022 Copyright: © 2022 Wanda Kiyah George Albert, Adi Fahrudin, Steward Lindong, Husmiati Yusuf Funding: This research did not receive any fnancial support. Competing Interests: The authors have declared that no competing interests exist. Open Access: This is an open-access article distributed under the terms of the Creative Commons Attribution- NonCommercial 4.0 International License (CC BY-NC 4.0) Introduction Sufering is a common sensation that all humans go through in their lives, particularly when they face stressful situations while caring for loved ones. During a major sickness, the agony is amplifed. Family caregivers must deal not just with their loved one’s illness, but also with the prospect of their loved one’s death. For the quality of life, this end-of-life disease has a higher impact on family caregivers than it does on patients [1], [2], [3], [4], [5], [6], [7]. Family caregivers’ quality of life ranged from medium to bad, particularly for those caring for end-stage acute cancer patients [6], [7], [8]. Families often become crucial providers of support and practical help during illness, especially in palliative care [7], [9], [10], [11]. More than half of carers in home-based palliative care settings have sufered since they handle a signifcant portion of the patient’s care [7], [12], [13]. Sufering can be severe and terrible, leading to a desire for end-of-life care [9], [12], [14]. Patients and their family carers have been identifed as being afected by the increased sufering experience [9], [15]. Caregivers often bear a burden that is greater than or equal to that faced by end-stage cancer patients. Even though family caregivers make signifcant contributions to care, they frequently feel neglected when their needs are overlooked by health- care professionals. The truth is that the family caregiver sufers just as much as the sick [16]. Secondary patients are family caregivers who must take care of their requirements while being monitored by healthcare providers [17]. The medical care provider frequently overlooks the requirements of the patient and caregivers to ensure that the patient’s needs are satisfed [6], [18]. The experiences and sufering of caregivers of terminally ill cancer patients will be discussed in this study. Concepts and types of sufering When perceived risks to themselves and their integrity are not met with enough resources of coping methods, including personal or psychosocial strategies, Since 2002